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多发性硬化症女性的良好感觉的意义。

Meanings of feeling well for women with multiple sclerosis.

机构信息

Division of Nursing, Department of Health Science, Luleå University of Technology, SE-97187 Luleå, Sweden.

出版信息

Qual Health Res. 2010 Sep;20(9):1254-61. doi: 10.1177/1049732310371103. Epub 2010 May 12.

Abstract

In research concerning multiple sclerosis (MS), the factors that impact on people's well-being and quality of life have been studied, but little has been written about what it means to feel well for women with MS. Therefore, in this study our aim was to describe meanings of feeling well for women with MS. We interviewed 15 women with MS, and a phenomenological hermeneutic interpretation was utilized to analyze the interviews. Through this study it can be understood that finding a pace where daily life goes on means that women with MS feel well when the illness is kept in check and is not the dominant experience. The findings of this study can be used to confirm women's experiences of feeling well, despite living with the consequences of MS. Health care professionals will find the results of this study useful when they reflect on and formulate the care of women with MS when attempting to support the latter's desire to feel well in their daily lives.

摘要

在多发性硬化症(MS)的研究中,已经研究了影响人们福祉和生活质量的因素,但对于 MS 患者感觉良好意味着什么,却鲜有文字记载。因此,在这项研究中,我们的目的是描述 MS 患者感觉良好的含义。我们采访了 15 名 MS 女性患者,并采用现象学诠释学解释方法对访谈进行了分析。通过这项研究可以理解,找到一个日常生活可以继续的节奏意味着当疾病得到控制并且不是主导体验时,MS 女性患者会感觉良好。这项研究的结果可以用来证实女性患者的良好感觉,尽管她们要承受 MS 的后果。当医疗保健专业人员在反思和制定 MS 女性患者的护理方案时,试图支持后者在日常生活中感觉良好的愿望,他们会发现这项研究的结果很有用。

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