Olsson Malin, Lexell Jan, Söderberg Siv
Division of Nursing, Department of Health Science, Luleå University of Technology, Luleå, Sweden.
Health Care Women Int. 2008 Apr;29(4):416-30. doi: 10.1080/07399330701876646.
We conducted a qualitative inquiry in order to describe the meaning of women's experiences of living with multiple sclerosis (MS). Multiple sclerosis is a chronic autoimmune disease of the central nervous system. The majority of persons living with MS are women. Living with MS has been described as difficult because of the uncertainty of the illness. Ten women with MS were interviewed and the interviews were analyzed with a phenomenological hermeneutic interpretation. In this study, we suggest that the meaning of living with MS for women can be understood as trying to maintain power and living with an unrecognizable body. The bodies of women with MS serve as hindrances in everyday life. Bodily changes evident to others impose feelings of being met in a different way, which can be understood as an expression of a violated dignity. At the same time, the women with MS struggle to protect their dignity.
我们进行了一项定性调查,以描述患有多发性硬化症(MS)的女性的生活经历的意义。多发性硬化症是一种中枢神经系统的慢性自身免疫性疾病。大多数患有MS的人是女性。由于疾病的不确定性,与MS共存被描述为困难的。采访了10名患有MS的女性,并采用现象学诠释学解释对访谈进行了分析。在本研究中,我们认为,对女性来说,与MS共存的意义可以理解为试图保持力量并与一个无法辨认的身体共处。患有MS的女性的身体在日常生活中成为障碍。他人明显可见的身体变化会带来以不同方式被对待的感觉,这可以被理解为尊严受到侵犯的一种表现。与此同时,患有MS的女性努力维护自己的尊严。