Department of Health Science, Luleå University of Technology, Luleå, Sweden.
Disabil Rehabil. 2012;34(4):329-36. doi: 10.3109/09638288.2011.607211. Epub 2011 Oct 10.
In this qualitative study the aim was to explore the meaning of living with migraine.
In-depth interviews were conducted with ten women about their experience of living with migraine. Halfway through the interview, the women drew a picture of what living with migraine is like, and the interview continued with the conversation being guided by the picture. The interviews were analyzed using a hermeneutic phenomenological method inspired by van Manen.
The analysis revealed an essence "Being obliged to endure a life accompanied by an unpredictable and invisible disorder" and three themes "Being besieged by an attack", "Struggling in a life characterized by uncertainty" and "Living with an invisible disorder."
Migraine is a debilitating disorder which accompanies life in the sense that it or the threat of its return is always present, and yet invisible to others. The struggle of enduring life with migraine is worsened by the feeling of having an invisible disorder and of being doubted. There is a need to increase the knowledge among healthcare professionals about what it means to live with migraine, something this qualitative study offers.
在这项定性研究中，我们旨在探讨偏头痛患者的生活体验。
我们对 10 名女性进行了深入访谈，了解她们偏头痛的生活经历。在访谈进行到一半时，这些女性会画一幅画，描绘偏头痛患者的生活是怎样的，然后根据这幅画继续进行访谈，访谈分析采用了受范梅南启发的阐释现象学方法。
分析结果揭示了偏头痛患者的生活体验的本质是“不得不忍受一种伴有不可预测和无形障碍的生活”，以及三个主题：“被偏头痛发作围困”、“在充满不确定性的生活中挣扎”和“与无形障碍共存”。
偏头痛是一种使人虚弱的疾病，它会伴随着生活，因为它或其发作的威胁总是存在的，但对其他人来说却是无形的。忍受偏头痛的生活的挣扎因无形障碍和被怀疑的感觉而加剧。有必要增加医护人员对偏头痛患者生活的理解，这正是本定性研究的目的。
