Muangpaisan Weerasak, Praditsuwan Rungnirand, Assanasen Jintana, Srinonprasert Varalak, Assantachai Prasert, Intalapaporn Somboon, Chatthanawaree Wichai, Dajpratham Piyapat, Kuptniratsaikul Vilai, Pisansalakij Doojpratna
Department of Preventive and Social Medicine, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand.
J Med Assoc Thai. 2010 May;93(5):601-7.
To identify the burdens of Thai dementia caregivers and to determine the services that could support them in this function.
The authors surveyed 88 dementia caregivers attending "Caregiver Day". The questionnaire contained Caregiver Burden Inventory. The answers range from "not at all descriptive" (zero) to "very descriptive" (4). The authors also explored baseline characteristics of caregivers and care recipients as well as caregiver's needs of a supporting system.
There was an 82% response rate. Responses in time-dependence burden distributed almost equally in the five possible scales. In developmental and physical burden, caregivers rate scores mainly from 0-2. The scores in social and emotional burden ranged mainly between 0-1. Dependency in basic activities of daily living correlated with higher caregiver burden (odd ratio 7.48, 95% confidence interval 1.42-39.53, p = 0.02), while sex and kinship did not. The top three caregiver's needs were 1) caregiver education and training, 2) telephone line provided for caregiver consultation and 3) special system in a hospital provided for dementia patients to have rapid access to see a doctor.
Caring for dementia patients can lead to high caregiver burden, particularly those caring for dependent patients. Physical and developmental burdens are affected more than social and emotional burdens. Culture, relationship quality and resources (coping, outlook on life and social support) might be contributing factors of this difference.
确定泰国痴呆症照料者的负担,并确定能够在此职责方面为他们提供支持的服务。
作者对参加“照料者日”的88名痴呆症照料者进行了调查。问卷包含照料者负担量表。答案范围从“完全不相符”(0)到“非常相符”(4)。作者还探究了照料者和受照料者的基线特征以及照料者对支持系统的需求。
回应率为82%。时间依赖性负担方面的回应在五个可能的量表中分布几乎相等。在发展性和身体负担方面,照料者的评分主要在0 - 2分。社会和情感负担方面的评分主要在0 - 1分之间。日常生活基本活动中的依赖性与更高的照料者负担相关(比值比7.48,95%置信区间1.42 - 39.53,p = 0.02),而性别和亲属关系则不然。照料者的前三大需求是:1)照料者教育与培训,2)提供照料者咨询的电话线,3)医院为痴呆症患者设立的能快速看病的特殊系统。
照料痴呆症患者会导致照料者负担沉重,尤其是那些照料有依赖性患者的人。身体和发展性负担受到的影响大于社会和情感负担。文化、关系质量和资源(应对方式、人生观和社会支持)可能是造成这种差异的因素。