Simi Silvana, Patoia Lucio
Institute of Clinical Physiology, Italian National Research Council, Pisa and Cochrane Collaboration Multiple Sclerosis Group, Milan, Italy.
J Ambul Care Manage. 2010 Jul-Sep;33(3):257-64. doi: 10.1097/JAC.0b013e3181e62bf3.
Patients are the only ones entitled of their own health. It derives that patients should be at the very center of the whole health care process and that health service should be done with and not to them. Unfortunately, too often patients are displaced or forgotten, although literature strongly suggests that benefit from their participation outweighs the drawbacks as they are an incredibly under-used resource both in research and in health care. Thus the challenges are for all the stakeholders involved, for professionals, National Health Services and patient associations to give the ways and tools for an active public involvement and participation, and for patient themselves to become expert and autonomous partners in health. The World Health Organization, through the program Patient Safety, has accepted this challenge, involving and training lay people to achieve a leader role in all the steps of health care, with a particular attention to safety, and to become able to speak up.
患者是自身健康的唯一责任人。由此可知,患者应处于整个医疗过程的核心位置,医疗服务应是与患者共同完成,而非对患者进行单方面的服务。不幸的是,患者常常被边缘化或遗忘,尽管文献强烈表明,患者参与带来的益处大于弊端,因为他们在研究和医疗保健中都是未得到充分利用的资源。因此,对于所有相关利益者,包括专业人员、国家卫生服务机构和患者协会来说,挑战在于提供方法和工具,以促进公众积极参与,对于患者自身而言,则要成为医疗领域专业且自主的合作伙伴。世界卫生组织通过“患者安全”项目接受了这一挑战,让非专业人员参与并接受培训,使其在医疗保健的各个环节发挥主导作用,尤其关注安全问题,并能够表达自己的意见。