Rijndam Rehabilitation Centre, Westersingel 300, Rotterdam, The Netherlands.
J Rehabil Med. 2010 Jun;42(6):528-35. doi: 10.2340/16501977-0555.
To assess participation and health-related quality of life in adults with bilateral spastic cerebral palsy, and explore associations with self-efficacy.
Cross-sectional study.
A sample of 56 adults with bilateral spastic cerebral palsy (mean age 36.4 (standard deviation 5.8) years; 62% male).
Daily activities and social participation (Life Habits 3.0), health-related quality of life (SF-36 Health Survey), demographic and clinical characteristics, and self-efficacy (General Self-Efficacy Scale (GSES-12)) were assessed. Associations were studied using multivariate logistic regression analyses.
At least 60% of the sample had difficulties with mobility, recreation and housing, and 44% had difficulty with personal care and employment. They perceived low health-related quality of life for physical functions, but not for mental functions. Corrected for demographic and clinical characteristics, general self-efficacy explained 49% of the variance in outcome on social participation, and the subscale Effort (GSES-12) 32% of the variance for the physical health-related quality of life and 16% of the mental health-related quality of life.
A significant number of adults with bilateral spastic cerebral palsy encountered difficulties in social participation and had a low perceived health-related quality of life for physical functions. Higher general self-efficacy or a greater willingness to expend effort in achieving behaviour was related to better participation and a higher physical and mental health-related quality of life.
评估双侧痉挛性脑瘫成人的参与度和健康相关生活质量，并探讨与自我效能的关联。
横断面研究。
56 名双侧痉挛性脑瘫成人（平均年龄 36.4 岁[标准差 5.8]；62%为男性）。
评估日常生活活动和社会参与（生活习惯 3.0）、健康相关生活质量（SF-36 健康调查）、人口统计学和临床特征以及自我效能（一般自我效能感量表（GSES-12））。使用多变量逻辑回归分析研究关联。
至少 60%的样本在移动、娱乐和住房方面存在困难，44%在个人护理和就业方面存在困难。他们认为身体功能的健康相关生活质量较低，但心理功能则不然。在校正人口统计学和临床特征后，一般自我效能解释了社会参与结果的 49%，努力子量表（GSES-12）解释了身体健康相关生活质量的 32%和心理健康相关生活质量的 16%。
相当数量的双侧痉挛性脑瘫成人在社会参与方面存在困难，并且身体功能的健康相关生活质量较低。较高的一般自我效能或在实现行为方面更大的意愿与更好的参与度和更高的身体和心理健康相关生活质量相关。
