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应对复杂的护理局面:应对挑战并推进针对脑瘫患者的成人护理框架。

Navigating the complex care landscape: Addressing challenges and advancing adult care frameworks for individuals with cerebral palsy.

作者信息

Clark Jensine', Sarmiento Cristina, Sanders Jessica, Wang Lauren, Fetsko Lauren, Akamagwuna Unoma

机构信息

University of Cincinnati, College of Medicine, Department of Neurology and Rehabilitation Medicine, 260 Stetson St Suite 5200, Cincinnati, OH 45214, USA.

University of Colorado Anschutz Medical Campus, Department of Pediatric Rehabilitation Medicine, Children's Hospital Colorado, 13123 East 16th Ave, Box 285, Aurora, CO 80045, USA.

出版信息

Health Care Transit. 2024 Feb 19;2:100051. doi: 10.1016/j.hctj.2024.100051. eCollection 2024.

Abstract

Despite cerebral palsy (CP) being the most common motor disability in childhood, there are more adults living with CP than children. The necessitates a systematic approach to the care of adults with CP. This perspective piece presents the complex nature of a lifespan approach to the care of a childhood-onset disability. We share the multidisciplinary considerations from a primary care model to address chronic health conditions and preventive care. We also present a care model with an emphasis on Neurology and Neurodevelopmental Disability with its implications for adults with CP. Finally, we advocate for a care model that encompasses a biopsychosocial approach to treatments and interventions with essential elements that include the adult perspective.

摘要

尽管脑瘫是儿童期最常见的运动障碍,但成年脑瘫患者的数量超过了儿童患者。这就需要一种系统的方法来照顾成年脑瘫患者。这篇观点文章阐述了针对儿童期发病残疾的全生命周期护理方法的复杂性。我们分享了从初级保健模式出发的多学科考量,以应对慢性健康状况和预防保健。我们还提出了一种以神经学和神经发育障碍为重点的护理模式及其对成年脑瘫患者的影响。最后,我们倡导一种护理模式,该模式采用生物心理社会方法进行治疗和干预,其中包括成年人视角等关键要素。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1a4a/11658267/6ac594beb6d0/gr1.jpg

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