The University Hospitals Centre for Nursing and Care Research (UCSF), Rigshospitalet department 7331, University of Copenhagen, Blegdamsvej 9, Copenhagen O, Denmark.
Qual Health Res. 2010 Oct;20(10):1446-56. doi: 10.1177/1049732310373558. Epub 2010 Jun 18.
Intensive care survivors often suffer from memory disorders, and some go on to develop anxiety, depression, and posttraumatic stress. Since the 1980s nurses have written diaries for intensive care patients to help them understand their illness and come to terms with their experiences after discharge. The central question we posed in this study was: Why do nurses write diaries in addition to conventional charting in the medical record? To answer this question, we compared intensive care diaries and hospital charts using textual analysis and narrative theory. The aims of our study were to compare patient diaries and hospital charts to explore (a) what each documentation instrument has to offer patients in their quest to make sense of their illness, and (b) why it is worthwhile for nurses to sustain the practice of writing diaries. The study findings show that the diary is coherent, personal, and supportive, whereas the hospital chart is fragmented, impersonal, and technical. The diary tells a comprehensive story that might help the patient to construct or reconstruct his or her own illness narrative.
重症监护幸存者常患有记忆障碍,有些还会发展为焦虑、抑郁和创伤后应激障碍。自 20 世纪 80 年代以来,护士就开始为重症监护患者写日记,以帮助他们了解自己的病情,并在出院后坦然面对自己的经历。我们在这项研究中提出的核心问题是:除了在医疗记录中进行常规记录外,护士为什么还要写日记?为了回答这个问题,我们使用文本分析和叙事理论比较了重症监护日记和医院图表。我们的研究目的是比较患者日记和医院图表,以探讨(a)每个记录工具在帮助患者理解疾病方面提供了什么,以及(b)为什么护士值得坚持写日记。研究结果表明,日记具有连贯性、个性化和支持性,而医院图表则是碎片化、非个性化和技术性的。日记讲述了一个全面的故事,可能有助于患者构建或重建自己的疾病叙事。