Haemophilia Centre and Haemostasis Unit, Department of Obstetrics and Gynaecology, Royal Free Hospital, London, UK.
Haemophilia. 2010 Sep 1;16(5):832-9. doi: 10.1111/j.1365-2516.2010.02269.x. Epub 2010 Jun 24.
Menorrhagia, heavy menstrual bleeding, is a common condition that has a substantial impact on the lives of many women. The objective measurement of menorrhagia is often impractical; therefore diagnosis and treatment are usually based on the direct perception of the woman. Menstrual problems are likely to be worse in women with bleeding disorders, as they are more likely to have heavy and painful menstrual periods and ovulation bleeding and pain. These can have a major impact on the quality of women's lives, especially those who suffer heavy menstruation. These problems can also lead to limitations at work and school and hinder educational and academic achievements. Only few studies describe how quality of life (QOL) changes in women with an underlying haemostatic defect; poorer QOL being associated with more frequent bleeding symptoms. Early recognition, accurate diagnosis and appropriate management of bleeding disorders should improve not only the quality of care for affected women but also their QOL. Increased awareness of the high prevalence of menstrual problems especially menorrhagia is essential for early diagnosis and provision of appropriate treatments without any delay. Accurate knowledge of the impact of menorrhagia on health-related quality of life (HRQOL) and its adequate assessment help individualize treatment and assess the magnitude of changes in HRQOL. An ideal situation would be to use a generic and a disease-specific measure together so that comparisons can be made on a general and disease-specific level.
月经过多，即大量的月经出血，是一种常见的病症，对许多女性的生活有重大影响。月经过多的客观测量通常是不切实际的；因此，诊断和治疗通常基于女性的直接感知。有出血性疾病的女性的月经问题可能更严重，因为她们更有可能出现月经量大且疼痛、排卵出血和疼痛的情况。这些对女性的生活质量有重大影响，尤其是那些患有严重月经过多的女性。这些问题也可能导致工作和学习受限，并阻碍教育和学业成就。只有少数研究描述了潜在止血缺陷的女性的生活质量（QOL）如何变化；QOL 较差与更频繁的出血症状相关。早期识别、准确诊断和适当的出血性疾病管理不仅应改善受影响女性的护理质量，还应改善其 QOL。提高对月经问题（尤其是月经过多）高发率的认识，对于早期诊断和提供适当治疗至关重要，以免延误。准确了解月经过多对健康相关生活质量（HRQOL）的影响并对其进行充分评估有助于个性化治疗并评估 HRQOL 的变化幅度。理想情况下，应同时使用通用和疾病特异性测量方法，以便可以在一般和疾病特异性水平上进行比较。
