Martins Patrícia Vieira, Caponi Sandra
Universidade Federal da Bahia, Salvador, BA, Brazil.
Cien Saude Colet. 2010 Jun;15 Suppl 1:1047-54. doi: 10.1590/s1413-81232010000700011.
This article describes historical notes about leprosy, from the discovery of the bacillus to the treatment done today. In this text we try to analyze the perception of some women, former leprosy patients, residents of Santa Teresa Hospital, located in the city of São Pedro de Alcântara, Santa Catarina State, on the stigma, prejudice and exclusion they suffered and still suffer today. We used the oral history of three women for research purposes and we found as a result of this "excluding" treatment over the years, that it built some kind of rejection about the disease. The search and affirmation of the identity of the stigmatized subject has become a constant. The model of social acceptance and the fact of being recognized as different and not discriminated is the main issue.
本文介绍了有关麻风病的历史记录,从杆菌的发现到如今的治疗情况。在本文中,我们试图分析一些曾患麻风病的女性的看法,她们是圣卡塔琳娜州圣佩德罗德阿尔坎塔拉市圣特雷莎医院的居民,讲述她们过去以及如今仍遭受的耻辱、偏见和排斥。我们以三位女性的口述历史作为研究素材,经过多年这种“排斥性”对待,结果发现人们对这种疾病产生了某种抗拒。对于被污名化主体身份的探寻与确认已成为一种常态。社会接纳模式以及被认可为与众不同且不被歧视这一事实才是主要问题。