Department of Pediatrics, University of Melbourne, and Department of Urology, Royal Children's Hospital, Melbourne, Victoria, Australia.
Fertil Steril. 2011 Jan;95(1):238-41. doi: 10.1016/j.fertnstert.2010.05.061. Epub 2010 Jul 19.
To assess long-term quality of life and sexual satisfaction outcomes of women treated for vaginal agenesis.
An audit project using questionnaires to assess quality of life (World Health Organization Quality of Life Bref [WHOQoL-Bref]) and sexual satisfaction (Golombok Rust Inventory of Sexual Satisfaction [GRISS]).
Gynecology Department of Royal Children's Hospital.
PATIENT(S): Women with vaginal agenesis.
INTERVENTION(S): Medical data were extracted from notes. Women were contacted at their review consultation or were offered the opportunity for review and participation in the audit.
MAIN OUTCOME MEASURE(S): WHOQoL-Bref and GRISS were measured. Correlation with medical details and treatment method was undertaken.
RESULT(S): Age range was 16-71 years (median, 23 years). WHOQoL-Bref (n=28) scores (mean±SD, 4.2±0.8), were similar to the mean Australian population score. The GRISS questionnaire (n=20) revealed that 75% of women had overall satisfactory scores. WHOQoL scores had a high correlation with GRISS scores. Time since diagnosis correlated to GRISS scores with 12 of 13 diagnosed>5 years earlier having satisfactory results. Women without a hymen had more problems with vaginismus.
CONCLUSION(S): General outcomes are good for these women, although vaginismus was an issue. There was a correlation between lower health satisfaction scores, feeling less feminine and feeling down, but not GRISS.
评估阴道发育不全女性患者的长期生活质量和性满意度结果。
采用问卷调查评估生活质量（世界卫生组织生活质量简表 [WHOQoL-Bref]）和性满意度（格鲁布洛克-拉斯特性满意度问卷 [GRISS]）的审计项目。
皇家儿童医院妇科。
阴道发育不全的女性。
从病历中提取医学数据。在患者复诊时联系她们，或为她们提供复查和参与审计的机会。
测量 WHOQoL-Bref 和 GRISS。并对其与医学细节和治疗方法进行相关性分析。
年龄范围为 16-71 岁（中位数，23 岁）。28 例患者的 WHOQoL-Bref 评分（均值±标准差，4.2±0.8）与澳大利亚普通人群的平均评分相似。20 例患者完成了 GRISS 问卷，其中 75%的女性总体满意度评分较高。WHOQoL 评分与 GRISS 评分高度相关，13 例诊断>5 年前的患者中，有 12 例结果满意。没有处女膜的女性阴道痉挛问题更严重。
这些女性的总体预后较好，但仍存在阴道痉挛问题。健康满意度评分较低、缺乏女性气质和情绪低落与 GRISS 评分呈负相关，但与 GRISS 评分无相关性。
