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我的孩子患了癌症:母亲养育患小儿癌症孩子的经历所付出的代价。

My child has cancer: the costs of mothers' experiences of having a child with pediatric cancer.

作者信息

Fletcher Paula C

机构信息

Wilfrid Laurier University, Waterloo, Ontario N2L 3C5.

出版信息

Issues Compr Pediatr Nurs. 2010;33(3):164-84. doi: 10.3109/01460862.2010.498698.

DOI:10.3109/01460862.2010.498698
PMID:20649381
Abstract

BACKGROUND

The primary objective of this exploratory research was to examine the lived experiences of female caregivers of children with cancer during diagnosis, treatment and the period thereafter. The specific purpose of this article was to examine the various costs associated with caring for a child with pediatric cancer.

MATERIALS AND METHODS

Interviews were completed with nine mothers of children who had been treated for pediatric cancer.

RESULTS

From this process, a number of salient issues were identified; however, this article focuses solely on the costs of caring for a child with cancer. The subthemes derived from these findings include: (1) financial and work issues; (2) health of family; (3) upheaval of family life; and (4) a lost life.

CONCLUSIONS

These findings exposed the realities of mothers faced with pediatric cancer, and reveal costs incurred by mothers caring for their ailing children, yielding information that can be used as a source of support for those faced with similar situations. Additionally, health care professionals are provided with insight into the costs associated with childhood cancer. This information can be used to help families cope more effectively with cancer and its negative effects.

摘要

背景

这项探索性研究的主要目的是考察癌症患儿的女性照料者在诊断、治疗及后续阶段的生活经历。本文的具体目的是考察照料患有儿科癌症的孩子所产生的各种费用。

材料与方法

对九位曾为患儿科癌症的孩子寻求治疗的母亲进行了访谈。

结果

从这一过程中,确定了若干突出问题;然而,本文仅关注照料癌症患儿的费用。从这些发现中得出的子主题包括:(1)财务和工作问题;(2)家庭健康;(3)家庭生活的动荡;以及(4)失去的生活。

结论

这些发现揭示了面对儿科癌症的母亲们的现实情况,并揭示了母亲们照料患病孩子所产生的费用,提供了可作为面临类似情况者的支持来源的信息。此外,为医疗保健专业人员提供了对与儿童癌症相关费用的洞察。这些信息可用于帮助家庭更有效地应对癌症及其负面影响。

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