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我的孩子患了癌症:在每位母亲的噩梦中寻找一线希望。

My child has cancer: finding the silver lining in every mother's nightmare.

作者信息

Fletcher Paula C

机构信息

Department of Kinesiology and Physical Education, Wilfrid Laurier University, Waterloo, Ontario.

出版信息

Issues Compr Pediatr Nurs. 2011;34(1):40-55. doi: 10.3109/01460862.2011.557905.

DOI:10.3109/01460862.2011.557905
PMID:21341966
Abstract

Having a child with cancer is one of the most taxing experiences a family can endure. With that in mind, the primary objective of this research was to explore the lived experiences of mothers of children with pediatric cancer during diagnosis, treatment, and the period thereafter. The specific purpose of this article however, was to examine the benefits or positives that emerged from the experience. One-on-one and e-mail semi-structured interviews were completed with 9 mothers of children treated for pediatric cancer. Four of the children had passed away from their illnesses. The subthemes derived for the benefits of the mothers' experiences consisted of: (1) support: importance of family and friends; (2) when life gives you lemons; and (3) finding the silver lining. It is anticipated that the findings from this exploratory research will be used as a source of support for individuals in similar situations and for front-line health care professionals.

摘要

孩子患癌症是一个家庭所能承受的最沉重的经历之一。考虑到这一点,本研究的主要目的是探索患有小儿癌症的孩子的母亲在诊断、治疗及之后这段时间的生活经历。然而,本文的具体目的是审视从这段经历中产生的益处或积极方面。对9位接受过小儿癌症治疗的孩子的母亲进行了一对一的电子邮件半结构化访谈。其中4个孩子已因病去世。从母亲们的经历中获得的益处所衍生出的子主题包括:(1)支持:家人和朋友的重要性;(2)当生活给你柠檬时;(3)找到一线希望。预计这项探索性研究的结果将为处于类似情况的个人和一线医疗保健专业人员提供支持来源。

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