Yepes Delgado Carlos Enrique, Yepes Delgado Fanny Lucía, Vargas Betancourt Mónica Lorena, Orrego Orozco Beatriz Elena
Department of Preventive Medicine and Public Health School of Medicine, University of Antioquia, Carrera 51D No 62-29, Medellín, Antioquia, Colombia.
Chronic Illn. 2010 Dec;6(4):252-62. doi: 10.1177/1742395310375991. Epub 2010 Jul 27.
The aim of this study was to describe how users perceive the preventive renal programme in Colombia and cope with their chronic kidney disease (CKD) from its early stages of development.
Some techniques from the grounded theory approach were used. The sampling strategy was selective.
For medical knowledge, CKD is an irreversible condition that, during its earlier stages does not represent an obstacle for living an apparently normal life, which may lead patients to get late diagnosis and identify their condition as a 'dormant disease'. Therefore, patients have learned to 'live with their disease' by developing various coping strategies. In the case of predialysis patients, these strategies include 'fear of dialysis and transplant', 'living a normal life' and 'considering CKD a deadly disease'. On the other hand, for dialysis patients, strategies include 'resignation', 'seeing dialysis as a lifesaver' and a 'feeling of loss'.
Patients recognizing their participation in the Renal Protection Programme may lead them to live longer and improve their quality of life. Also, due to the asymptomatic nature of CKD, late diagnoses are not uncommon, hence opportunities for prevention are usually scarce, which in turn becomes a challenge for public health.
本研究旨在描述哥伦比亚的使用者如何看待预防性肾脏项目，以及如何从慢性肾脏病（CKD）发展的早期阶段应对该疾病。
采用了扎根理论方法中的一些技术。抽样策略是有选择性的。
就医学知识而言，CKD是一种不可逆的疾病，在其早期阶段，它并不妨碍患者过上看似正常的生活，这可能导致患者诊断延迟，并将自己的病情视为“潜伏疾病”。因此，患者通过制定各种应对策略学会了“与疾病共存”。对于透析前患者，这些策略包括“害怕透析和移植”、“过正常生活”以及“将CKD视为致命疾病”。另一方面，对于透析患者，策略包括“顺从”、“将透析视为救命稻草”以及“失落感”。
患者认识到自己参与肾脏保护项目可能会使他们活得更长并提高生活质量。此外，由于CKD具有无症状的特性，延迟诊断并不罕见，因此预防机会通常很少，这反过来又成为公共卫生面临的一项挑战。
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