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8至11岁特定语言障碍儿童的健康相关生活质量

Health-related quality of life of children with specific language impairment aged 8-11.

作者信息

Arkkila E, Räsänen P, Roine R P, Sintonen H, Saar V, Vilkman E

机构信息

Department of Phoniatrics, Helsinki University Central Hospital, Helsinki and Uusimaa Hospital Group, Helsinki, Finland.

出版信息

Folia Phoniatr Logop. 2011;63(1):27-35. doi: 10.1159/000319735. Epub 2010 Aug 5.

Abstract

OBJECTIVE

To evaluate, in a clinical sample of children with a diagnosis of specific language impairment (SLI), the health-related quality of life (HRQoL).

SUBJECTS AND METHODS

Fifty-five children, aged 8-11 years, filled out a generic HRQoL questionnaire, 17D, and another questionnaire about school and rehabilitation. The HRQoL comparison group was a sample of 244 typically developing schoolchildren.

RESULTS

Response rate was 86%. Of the respondents, 80% were male. The total 17D score of the subjects did not differ from that of controls. The 17D profiles of the groups differed on several dimensions, but significant differences emerged only on the dimensions concerning speech, where the study group was worse off, and sleep, where the controls reported more problems. Respondents with low verbal IQ reported more distress. The vast majority of respondents were in special education or received extra educational support and one-third were still having speech therapy.

CONCLUSION

In this clinical sample, despite the persisting need for extra support, the overall well-being of children with SLI was at age level. Still, some differences existed, and HRQoL measurement may prove a good tool for professionals to find those children with SLI at risk for diminished well-being and for later problems.

摘要

目的

在诊断为特定语言障碍(SLI)的儿童临床样本中评估健康相关生活质量(HRQoL)。

对象与方法

55名8至11岁的儿童填写了一份通用的HRQoL问卷(17D)以及另一份关于学校和康复的问卷。HRQoL比较组为244名发育正常的学童样本。

结果

回复率为86%。在受访者中,80%为男性。研究对象的17D总分与对照组无差异。两组的17D概况在几个维度上有所不同,但仅在言语维度(研究组情况更差)和睡眠维度(对照组报告有更多问题)出现了显著差异。语言智商低的受访者报告有更多困扰。绝大多数受访者接受特殊教育或得到额外的教育支持,三分之一的人仍在接受言语治疗。

结论

在这个临床样本中,尽管仍持续需要额外支持,但SLI儿童的总体幸福感处于相应年龄水平。不过,仍存在一些差异,HRQoL测量可能是专业人员找出那些幸福感降低和有后续问题风险的SLI儿童的一个良好工具。

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