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父母患有晚期癌症与青少年子女之间的互动模式。

Interaction patterns between parents with advanced cancer and their adolescent children.

机构信息

Kent State University, Kent, OH 44242-0001, USA.

出版信息

Psychooncology. 2011 Oct;20(10):1108-15. doi: 10.1002/pon.1831. Epub 2010 Aug 23.

Abstract

OBJECTIVE

Advanced cancer profoundly affects those with the illness and their families. The interaction patterns between parents with advanced cancer and their adolescent children are likely to influence how a family experiences a parent's dying process. There is little information on such interactions. This study aimed to develop an explanatory model that explains interaction patterns between parents with advanced cancer and their adolescent children and to identify strategies to prepare children for their lives after a parent dies.

METHODS

Semi-structured interviews were conducted with 9 parents with advanced cancer, 7 of their spouses/partners, and 10 of their adolescent children. The interviews were recorded, transcribed verbatim, and analyzed using a constructionist grounded theory approach.

RESULTS

Twenty-six family participants were interviewed. Their main concern was not having enough time together. In response, they described a four-stage process for optimizing the time they had left together: coming to know our time together is limited, spending more time together, extending our time together, and giving up our time together to end the suffering. The adolescents and their ill parents did not change their interaction patterns until they realized their time together was limited by the advanced cancer. Then they spent more time together to make things easier for each other.

CONCLUSIONS

Time was of great importance to the parents and adolescents; all the participants structured their stories in relation to the concept of time. The model reflects the dynamic process by which families continuously adapt their relationships in the face of advanced cancer.

摘要

目的

晚期癌症严重影响患者及其家属。父母与患有晚期癌症的青少年子女之间的互动模式可能会影响家庭经历父母临终过程的方式。关于这些互动的信息很少。本研究旨在开发一个解释模型,解释患有晚期癌症的父母和他们的青少年子女之间的互动模式,并确定为孩子在父母去世后做好生活准备的策略。

方法

对 9 名患有晚期癌症的父母、其中 7 名的配偶/伴侣和 10 名青少年子女进行了半结构化访谈。对访谈进行了录音、逐字转录,并使用建构主义扎根理论方法进行了分析。

结果

对 26 名家庭参与者进行了访谈。他们的主要关注点是没有足够的时间在一起。作为回应,他们描述了一个优化他们在一起剩余时间的四阶段过程:认识到我们在一起的时间是有限的,花更多的时间在一起,延长我们在一起的时间,以及放弃我们在一起的时间以结束痛苦。青少年和他们患病的父母直到意识到他们在一起的时间受到晚期癌症的限制,才改变他们的互动模式。然后,他们花更多的时间在一起,互相帮助。

结论

时间对父母和青少年来说非常重要;所有参与者都根据时间的概念来构建他们的故事。该模型反映了家庭在面对晚期癌症时不断调整其关系的动态过程。

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