Department of Rehabilitation Medicine, Mount Sinai School of Medicine, New York, NY 10029-6574, USA.
Arch Phys Med Rehabil. 2010 Sep;91(9 Suppl):S5-16. doi: 10.1016/j.apmr.2009.10.036.
While participation is increasingly defined as the key outcome of rehabilitation, disagreements on and shortcomings in the definition, operationalization, and measurement of this concept abound and interfere with the progress of clinical services and research. This article explores a number of the major issues related to the quantification of participation and makes suggestions for new directions, using the following orienting questions: What is the definition of participation? Where is the border between Participation and Activity? Is there more to participation than performance? What domains should be included in a participation measure? What are the appropriate metrics in quantifying participation? How do we define adequate participation? How should participation be operationalized? What is the proper measurement model for participation instruments? How should we collect data on participation? How do we evaluate the quality of a participation instrument?
虽然参与度越来越被定义为康复的关键结果，但对于该概念的定义、操作和衡量存在着分歧和不足，这阻碍了临床服务和研究的进展。本文通过以下导向性问题，探讨了与参与度量化相关的一些主要问题，并为新的方向提出了建议：参与的定义是什么？参与和活动之间的界限在哪里？参与的内涵是否不止于表现？参与度衡量应包含哪些领域？衡量参与度的适当指标是什么？如何定义充分参与？应如何操作参与？参与工具的适当测量模型是什么？应如何收集参与数据？如何评估参与工具的质量？
