癌症确诊患者参与度测量的偏好：一项定性内容分析
Preferences for Participation Measurement Among Individuals Diagnosed With Cancer: A Qualitative Content Analysis.
作者信息
L'Hotta Allison J, Varughese Taniya E, Lyons Kathleen D, Trebelhorn Audrey, Manohar Annamayil, King Allison A
机构信息
Washington University, St. Louis, MO, USA.
MGH Institute of Health Professions, Boston, MA, USA.
出版信息
OTJR (Thorofare N J). 2024 Apr;44(2):244-254. doi: 10.1177/15394492231181104. Epub 2023 Jun 24.
Individuals with cancer experience occupational participation restrictions, but there is no consensus on how to measure this construct. The objective of this study is to describe the perspectives and preferences of individuals with cancer regarding participation measurement. Forty individuals with brain, breast, colorectal, and lung cancer provided feedback on three participation measures in semi-structured interviews. Through an iterative, team-based content analysis approach, interview text was coded using the study codebook and organized into themes. Core themes included (a) participation measures highlighted occupational priorities, (b) measuring participation can identify supportive care needs, (c) measures must balance thoroughness with speed of completion, (d) measurement timeframe varies by treatment phase, and (e) evaluating community engagement is not a priority for some individuals with cancer. Integrating participation measures into cancer care can support referrals to occupational therapy and supportive services. It is essential to consider time since cancer diagnosis and client priorities when selecting participation measures.
癌症患者会经历职业参与限制，但对于如何衡量这一概念尚无共识。本研究的目的是描述癌症患者对参与度测量的看法和偏好。40名患有脑癌、乳腺癌、结直肠癌和肺癌的患者在半结构化访谈中对三种参与度测量方法提供了反馈。通过基于团队的迭代式内容分析方法，使用研究编码手册对访谈文本进行编码，并组织成主题。核心主题包括：(a) 参与度测量突出了职业重点；(b) 测量参与度可以确定支持性护理需求；(c) 测量方法必须在全面性和完成速度之间取得平衡；(d) 测量时间范围因治疗阶段而异；(e) 对一些癌症患者来说，评估社区参与不是优先事项。将参与度测量纳入癌症护理可以支持转介至职业治疗和支持性服务。在选择参与度测量方法时，考虑自癌症诊断以来的时间和患者的优先事项至关重要。
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