Reitinger E, Pleschberger S, Schumann F
IFF - Palliative Care und OrganisationsEthik, Alpen-Adria-Universität Klagenfurt, Schottenfeldgasse 29/4, 1070 Wien, Österreich.
Z Gerontol Geriatr. 2010 Oct;43(5):285-90. doi: 10.1007/s00391-010-0140-7.
Community based housing for people with dementia is gaining importance. In co-operation between the people concerned, their relatives, professionals and volunteers, person-centred care, nursing and guidance can be realised within small units. Questions regarding end of life, dying, grief and the role of palliative care form the basis of the exploratory qualitative study presented here. Coping with end of life, ethical decisions and the relevance of hospice and palliative care in the field are highlighted. The results of the study show that "shared flats for people with dementia" are good places for death and dying. Close relationships, good communication with relatives and highly motivated professionals can be regarded as powerful resources. So far only few co-operations between hospice and palliative care exist. Areas of improvement encompass clinical issues and coping with bereavement.
为痴呆症患者提供的社区住房正变得越来越重要。在相关人员、他们的亲属、专业人员和志愿者之间的合作下,可以在小单元内实现以人为本的护理、照料和指导。关于生命终结、死亡、悲伤以及姑息治疗的作用等问题构成了本文所呈现的探索性定性研究的基础。文中强调了应对生命终结、伦理决策以及临终关怀和姑息治疗在该领域的相关性。研究结果表明,“痴呆症患者共享公寓”是死亡和临终的良好场所。亲密的关系、与亲属的良好沟通以及积极性很高的专业人员可被视为强大的资源。到目前为止,临终关怀和姑息治疗之间的合作很少。有待改进的方面包括临床问题和应对丧亲之痛。