Department of Clinical and Health Psychology, University of Florida, Gainesville, FL, USA.
J Dev Behav Pediatr. 2010 Nov-Dec;31(9):713-9. doi: 10.1097/DBP.0b013e3181f17c52.
Researchers have recently used a framework of traumatic stress to describe the psychological functioning of children experiencing a chronic illness and their families; however, few studies are available directly comparing symptoms across disease groups. This study compared traumatic stress symptoms of youth being considered for solid organ and bone marrow transplantation, youth diagnosed with human immunodeficiency virus, youth diagnosed with sickle cell disease and their parents. Correlates of traumatic stress across these populations were also examined.
Participants included 64 youth and caregiver dyads with previously scheduled appointments at 1 of 3 specialty clinics. Parents completed measures of family demographics, traumatic stress symptoms, and child functional status. Youth (n = 45) and parents each completed self-report and parent-proxy measures of youth traumatic stress symptoms.
Ten percent of youth by self-report, 18% of youth by parent-proxy report, and 13% of caregivers described symptoms suggestive of posttraumatic stress disorder. Parents of pediatric transplant self-reported greater symptoms than caregivers of youth with human immunodeficiency virus and sickle cell disease (p < .05). Although child functional impairment did not predict child symptoms, a trend was found where parents experiencing more traumatic stress symptoms themselves reported their children experienced greater symptoms by parent-proxy report (p =.07).
Findings suggest that although most children and parents across disease groups report subclinical levels of traumatic stress symptoms, traumatic stress symptoms may be especially salient for families of pediatric transplant candidates. Although interventions are currently available to treat posttraumatic stress disorder symptoms, they will likely need to be individualized to meet the needs of specific disease groups.
研究人员最近使用创伤应激框架来描述患有慢性疾病的儿童及其家庭的心理功能；然而，直接比较疾病组间症状的研究很少。本研究比较了正在考虑进行实体器官和骨髓移植的青少年、被诊断患有人类免疫缺陷病毒的青少年、被诊断患有镰状细胞病的青少年及其父母的创伤后应激症状。还检查了这些人群的创伤后应激症状的相关性。
参与者包括 64 名青少年和护理人员对，他们之前在 3 家专科诊所中的 1 家预约。父母完成了家庭人口统计学、创伤后应激症状和儿童功能状态的测量。（n = 45）青少年和父母分别完成了自我报告和父母代理的青少年创伤后应激症状测量。
10%的青少年通过自我报告，18%的青少年通过父母代理报告，13%的照顾者描述了创伤后应激障碍的症状。儿科移植的父母自我报告的症状比人类免疫缺陷病毒和镰状细胞病的青少年的照顾者更严重（p <.05）。尽管儿童功能障碍并不能预测儿童症状，但发现父母自身经历更多创伤后应激症状的趋势，他们通过父母代理报告的孩子经历了更严重的症状（p =.07）。
研究结果表明，尽管大多数疾病组的儿童和父母报告了亚临床水平的创伤后应激症状，但创伤后应激症状对于儿科移植候选者的家庭可能尤其明显。虽然目前有治疗创伤后应激障碍症状的干预措施，但它们可能需要个性化，以满足特定疾病组的需求。
