J Health Care Poor Underserved. 2023;34(3):1070-1104.
People of African descent and those identifying as Black and/or Latino experience a disproportionate burden of sickle cell disease (SCD), a chronic, serious blood condition. Caregivers of children with chronic medical conditions report worse mental health than others. Disease-associated stressors can affect caregivers of children with SCD. We conducted a systematic review to summarize the prevalence of mental health symptoms in caregivers of children with SCD and to see if symptoms were associated with the child's SCD. This review is reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) guidelines. We searched PubMed, PsycINFO, and Embase, identifying 1,322 records of which 40 met criteria for inclusion in this review. Findings suggest caregivers experience mental health problems, and poorer mental health was associated with worse child SCD-related outcomes and treatment adherence. Efforts should be made to routinely screen SCD caregiver mental health and to refer accordingly.
非裔人群以及自认为是黑人或拉丁裔的人群患有镰状细胞病（SCD）的负担不成比例，SCD 是一种慢性、严重的血液疾病。患有慢性疾病的儿童的护理人员报告说，他们的心理健康状况比其他人差。与疾病相关的压力源会影响患有 SCD 儿童的护理人员。我们进行了一项系统评价，以总结患有 SCD 儿童的护理人员的心理健康症状的流行率，并观察这些症状是否与儿童的 SCD 有关。本综述根据系统评价和荟萃分析的首选报告项目（PRISMA）指南进行报告。我们搜索了 PubMed、PsycINFO 和 Embase，共确定了 1322 条记录，其中 40 条符合纳入本综述的标准。研究结果表明，护理人员存在心理健康问题，且心理健康状况较差与儿童 SCD 相关结局和治疗依从性较差有关。应努力常规筛查 SCD 护理人员的心理健康状况，并相应地转介。
