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关于为慢性阻塞性肺疾病患者提供临终沟通指导的网络研讨会的可行性

Feasibility of a webinar for coaching patients with chronic obstructive pulmonary disease on end-of-life communication.

作者信息

Reinke Lynn F, Griffith Randall G, Wolpin Seth, Donesky-Cuenco DorAnne, Carrieri-Kohlman Virginia, Nguyen Huong Q

机构信息

Department of Veterans Affairs, VA Puget Sound Health Care System, Health Services Research & Development, University of Washington, Seattle, WA 98101, USA.

出版信息

Am J Hosp Palliat Care. 2011 May;28(3):147-52. doi: 10.1177/1049909110376807. Epub 2010 Sep 11.

Abstract

RATIONALE

Previous research has shown that patients with chronic obstructive pulmonary disease (COPD) desire conversations about end-of-life wishes. However, most clinicians do not initiate these discussions. We explored whether educating patients via Web conferencing (webinar) would equip them with knowledge and skills to engage in conversations about end-of-life care.

RESULTS

Prewebinar, 6 of the 7 patients had completed advanced care planning forms but only half had shared these with their clinicians. Most patients felt confident about discussing end-of-life preferences. At 3 months, all participants had taken further action on end-of-life planning. Five felt the webinar was an acceptable option if unable to participate in person. All patients voiced that adding a video stream would have promoted interaction in the context of these sensitive conversations.

CONCLUSIONS

This pilot project demonstrated that a webinar to educate patients on end-of-life communication was acceptable for the majority of patients. Improvements in audio and video bandwidth may facilitate more interaction among virtual participants. This may be particularly useful for patient education on sensitive topics.

摘要

理论依据

先前的研究表明,慢性阻塞性肺疾病(COPD)患者希望就临终愿望进行沟通。然而,大多数临床医生并未发起此类讨论。我们探讨了通过网络会议(网络研讨会)对患者进行教育是否能使他们具备参与临终关怀相关对话的知识和技能。

结果

在参加网络研讨会之前,7名患者中有6名填写了高级护理计划表格,但只有一半与他们的临床医生分享了这些表格。大多数患者对讨论临终偏好感到自信。在3个月时,所有参与者都在临终规划方面采取了进一步行动。5名患者认为,如果无法亲自参加,网络研讨会是一个可以接受的选择。所有患者都表示,增加视频流将有助于在这些敏感对话中促进互动。

结论

该试点项目表明,为患者提供临终沟通教育的网络研讨会对大多数患者来说是可以接受的。音频和视频带宽的改善可能会促进虚拟参与者之间更多的互动。这对于就敏感话题对患者进行教育可能特别有用。

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