患者对 HCV 治疗期间从护士专家那里获得的信息和支持的看法。

Patients' perceptions of information and support received from the nurse specialist during HCV treatment.

机构信息

St James's Hospital, Dublin, Ireland.

出版信息

J Clin Nurs. 2010 Oct;19(19-20):2869-78. doi: 10.1111/j.1365-2702.2010.03239.x.

DOI:10.1111/j.1365-2702.2010.03239.x

PMID:20846231

Abstract

AIM

To identify patients' perceptions of support received from the nurse specialist during Hepatitis C virus (HCV) treatment.

BACKGROUND

HCV is a worldwide health problem. However, it is a treatable disease and treatment success rates are high. Unfortunately, treatment comes with a multitude of adverse side effects and patients require informational and psychological support from specialist nurses while on treatment. To date, there is little nursing research on support received from this specialist nursing care.

DESIGN

This study used a quantitative descriptive design.

METHOD

A 59-item questionnaire collected data from 106 patients with a diagnosis of HCV attending a HCV outpatient clinic.

RESULTS

Overall, patients were very satisfied with support received. Advice on contraception was well received. However, many patients did not feel supported with regard to advice on sleep management. There were no statistically significant differences between overall satisfaction and gender, age, genotype and risk factor. However, there were significant correlations found between support received and reported genotype. Those patients presenting with genotype 1, who are mostly infected through blood or blood products, indicated that they require more support in relation to information on side effects of treatment, quality of life and support groups. Specific approaches to support and advice for this cohort may need to be incorporated into current services.

CONCLUSION

Results of this study reinforce the need for the ongoing use of specialist nurse services and development of this service where no such facilities exist. In addition, the service may need to further recognise and support the information and psychological needs of patients with differing modes of HCV infection.

RELEVANCE TO CLINICAL PRACTICE

Findings provide information to practising nurse specialists about patient's views of information and support received from nurse specialists in HCV treatment centres and identify where deficits exist.

摘要

目的

确定患者在丙型肝炎病毒（HCV）治疗期间从护士专家那里获得的支持的看法。

背景

HCV 是一个全球性的健康问题。然而，它是一种可治疗的疾病，治疗成功率很高。不幸的是，治疗会带来许多不良反应，患者在治疗期间需要从专科护士那里获得信息和心理支持。迄今为止，关于从这种专科护理中获得的支持，护理研究很少。

设计

本研究采用定量描述性设计。

方法

一份 59 项的问卷从 106 名接受 HCV 门诊治疗的 HCV 患者那里收集数据。

结果

总体而言，患者对获得的支持非常满意。关于避孕的建议很受欢迎。然而，许多患者在睡眠管理方面的建议上没有得到支持。总体满意度与性别、年龄、基因型和危险因素之间没有统计学上的显著差异。然而，在支持与报告的基因型之间发现了显著的相关性。那些携带基因型 1 的患者，他们大多是通过血液或血液制品感染的，表明他们需要更多关于治疗副作用、生活质量和支持小组的信息支持。可能需要将针对这一群体的具体支持和建议纳入当前的服务中。