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资源有限环境下慢性乙型肝炎青少年的感知支持性护理需求

Perceived Supportive Care Needs of Adolescents With Chronic Hepatitis B in a Resource-limited Setting.

作者信息

Kolbila Lilian, Adjei Charles Ampong, Kyei Josephine M, Agyemang-Prempeh Charles, Fosu Peter Kwabena

机构信息

Suntreso Government Hospital, Kumasi, Ghana.

School of Nursing and Midwifery, University of Ghana, Accra, Ghana.

出版信息

J Patient Exp. 2022 Jun 7;9:23743735221106596. doi: 10.1177/23743735221106596. eCollection 2022.

Abstract

In Ghana, adolescents are disproportionately affected by hepatitis B. However, studies into adolescents' supportive care needs are lacking. The purpose of this exploratory qualitative study was to explore the supportive care needs of 18 adolescents with chronic hepatitis B who were receiving care at a tertiary hospital in Ghana. The data were processed using QSR Nvivo version 11.0 and analyzed using the Braun and Clarke procedure for thematic data analysis. According to the findings, adolescents with chronic hepatitis B have unmet supportive care needs ranging from information to financial need, psychological support, and social support. Explicitly, participants reportedly had a dilemma as to whether to keep or terminate their pregnancy to prevent transmission of the virus to their newborns. Physicians and nurses were perceived to be preoccupied with medication prescription and laboratory request writing rather than giving pretest and posttest counseling following diagnosis. This study highlights the need to have a tailor-made liver care for adolescents. Pretest and posttest counseling for adolescents with hepatitis B are also required.

摘要

在加纳,青少年受乙型肝炎的影响尤为严重。然而,针对青少年支持性护理需求的研究却很匮乏。这项探索性定性研究的目的是探究18名在加纳一家三级医院接受治疗的慢性乙型肝炎青少年的支持性护理需求。数据使用QSR Nvivo 11.0版本进行处理,并采用布劳恩和克拉克主题数据分析程序进行分析。研究结果显示,慢性乙型肝炎青少年的支持性护理需求未得到满足,涵盖从信息需求到经济需求、心理支持和社会支持等方面。具体而言,据报告,参与者在是保留还是终止妊娠以防止病毒传播给新生儿的问题上左右为难。人们认为医生和护士忙于开药方和写实验室检查申请单,而不是在诊断后提供检测前和检测后咨询。这项研究凸显了为青少年量身定制肝脏护理的必要性。同时,也需要为乙型肝炎青少年提供检测前和检测后咨询。

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本文引用的文献

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Impact of Stigma on People Living with Chronic Hepatitis B.耻辱感对慢性乙型肝炎患者的影响。
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