Department of Nursing Sciences, Faculty of Social and Life Science, School of Health Sciences, University College of Borås, Borås, Sweden.
J Clin Nurs. 2010 Oct;19(19-20):2888-96. doi: 10.1111/j.1365-2702.2010.03259.x.
To explore relatives' information needs and the characteristics of their information-seeking process shortly after the stroke event and six months later.
Providing relatives of stroke survivors with information is important, as lack of information increases their uncertainty and risk becoming the 'second patient in the family' and early death. Therefore, it is essential to be aware of relatives' information needs and information-seeking process the first six months after stroke.
This qualitative study has a descriptive design.
Open-ended interviews were conducted with sixteen relatives after stroke survivor's admission to stroke unit and six months later with nine of these relatives. Data were analysed by means of content analysis.
The identified information needs covered the spectrum from stroke survivor's medical condition because nurses' actions to relatives' changed health and life situation. Furthermore, relatives' information-seeking process was found to be related to their level of personal involvement, situational circumstances, different forms of knowledge and sources of information.
Relatives' search for information emerges when health and lifestyle changes occur in survivors or themselves. It is important that this information affect them personally. Also, they need to develop different forms of knowledge when they cannot trust their own competences. As a result, instead of following established curricula based on their beliefs of relatives' information needs, nurses need to practice on identifying relatives' information needs.
Different information needs and characteristics described in the study can serve as guidance in the development and implementation of pedagogical interventions to support relatives of stroke survivors. One pedagogical implication is to explore what a specific relative wants to know by how he/she talks or thinks about it. Thus, it must be taken into consideration that level of personal involvement, situational circumstances, sources of information and factual knowledge, understanding and skills are intertwined.
探讨亲属在中风事件发生后不久和六个月后的信息需求以及他们的信息搜索过程的特征。
为中风幸存者的亲属提供信息很重要，因为缺乏信息会增加他们的不确定性，并增加他们成为“家庭中的第二个病人”和早期死亡的风险。因此，了解亲属在中风后六个月内的信息需求和信息搜索过程至关重要。
这是一项具有描述性设计的定性研究。
在中风幸存者入住中风病房后和六个月后，对 16 名亲属进行了开放式访谈，其中 9 名亲属进行了访谈。采用内容分析法对数据进行分析。
确定的信息需求涵盖了从中风幸存者的医疗状况到护士对亲属健康和生活状况的改变。此外，亲属的信息搜索过程与他们的个人参与程度、情境情况、不同形式的知识和信息来源有关。
当幸存者或他们自己的健康和生活方式发生变化时，亲属会开始寻找信息。重要的是，这些信息要对他们个人产生影响。此外，当他们无法信任自己的能力时，他们需要发展不同形式的知识。因此，护士需要实践确定亲属的信息需求，而不是基于他们对亲属信息需求的信念来遵循既定的课程。
研究中描述的不同信息需求和特征可以作为指导，为中风幸存者的亲属制定和实施教学干预措施。一个教学启示是通过亲属的谈话或思考方式来探索他/她想知道什么。因此，必须考虑到个人参与程度、情境情况、信息来源以及事实知识、理解和技能是相互交织的。
