Kristensson Linda, Björkdahl Ann
Department of Occupational Therapy and Physiotherapy, Sahlgrenska University Hospital, Gothenburg.
Institute of Neuroscience and Physiology, Department of Occupational Therapy, Sahlgrenska Academy, University of Gothenburg.
Rehabil Process Outcome. 2020 Aug 13;9:1179572720947086. doi: 10.1177/1179572720947086. eCollection 2020.
Stroke not only affects the stroke survivor, it also significantly affects their families. Given the important supportive role that relatives of stroke survivor have, they should receive information that helps them plan and cope with the new situation. The objective of the study was to explore how relatives to stroke survivors perceived the information provided by the stroke unit.
This qualitative study was based on extensive semi-structured interviews with an inductive approach. A heterogeneous convenience sample of relatives to stroke survivor (n=14) was selected. Qualitative content analysis served to analyze the transcribed interview texts.
The content analysis yielded four categories, each with 2-3 subcategories. The overall theme was "to be acknowledged or not": it encompassed the underlying meaning and the relationships between the categories. The four categories were as follows: shifting information needs; striving for information; lacking of continuity and structure; and taking part and being acknowledged.
The study highlighted that the relatives of stroke survivors have a strong need for information and showed that the relatives experienced that they did not always feel satisfactorily informed and supported by the healthcare professionals in the stroke unit. A challenge for the healthcare professionals was to be able to give the right information at the right time and in the appropriate way. The study also showed that when the relatives were acknowledged and invited to participate in the rehabilitation process, they were less anxious of the discharge.
中风不仅影响中风幸存者，还会对其家庭产生重大影响。鉴于中风幸存者的亲属所发挥的重要支持作用，他们应该获得有助于他们规划和应对新情况的信息。本研究的目的是探讨中风幸存者的亲属如何看待中风单元提供的信息。
本定性研究基于广泛的半结构化访谈，采用归纳法。选取了中风幸存者亲属的异质性便利样本（n = 14）。定性内容分析法用于分析转录后的访谈文本。
内容分析产生了四个类别，每个类别有2 - 3个子类别。总体主题是“是否得到认可”：它涵盖了潜在含义以及类别之间的关系。这四个类别如下：不断变化的信息需求；争取获取信息；缺乏连续性和系统性；参与并得到认可。
该研究强调中风幸存者的亲属对信息有强烈需求，并表明亲属们感到中风单元的医护人员并非总能让他们充分了解情况并给予支持。医护人员面临的一个挑战是能够在正确的时间以适当的方式提供正确的信息。该研究还表明，当亲属得到认可并被邀请参与康复过程时，他们对出院的焦虑会减轻。
