Ekdahl Ann, Söderberg Siv, Holmström Rising Malin
Department of Health Sciences, Mid Sweden University, SE-852 33 Sundsvall, Sweden.
Nurs Rep. 2023 Jul 15;13(3):982-989. doi: 10.3390/nursrep13030086.
Chronic obstructive pulmonary disease stage III or IV is a progressive and incurable disease. The hallmark of the disease is breathlessness, and it is graded into four different stages, from mild to severe. Living with chronic obstructive pulmonary disease impacts almost every aspect of everyday life for an affected person. As the illness progresses to stages III and IV, the need for support from close relatives increases. The aim of this study was to explore and describe the experiences of close relatives of women with chronic obstructive pulmonary disease stage III or IV and it used qualitative content analysis of individual, semi-structured interviews. Close relatives (n = 9) were interviewed about their experience of being close to a woman with chronic obstructive pulmonary disease stage III or IV. They experienced stress and uncertainty in an unpredictable everyday life. Close relatives supported the women both practically and emotionally and they called for tailored information about the illness, considering it as an essential tool for support. The results highlighted that healthy close relatives had difficulty in understanding the experience of living with chronic obstructive pulmonary, as they take the simple fact of breathing for granted most of the time.
慢性阻塞性肺疾病Ⅲ期或Ⅳ期是一种进行性且无法治愈的疾病。该疾病的标志是呼吸急促，它被分为四个不同阶段，从轻到重。患有慢性阻塞性肺疾病会影响患者日常生活的几乎方方面面。随着病情发展到Ⅲ期和Ⅳ期，患者对近亲支持的需求增加。本研究的目的是探索和描述患有慢性阻塞性肺疾病Ⅲ期或Ⅳ期女性近亲的经历，研究采用了对个体进行半结构化访谈的定性内容分析法。对9名近亲进行了访谈，询问他们与患有慢性阻塞性肺疾病Ⅲ期或Ⅳ期女性亲近相处的经历。他们在不可预测的日常生活中经历了压力和不确定性。近亲在实际生活和情感上都给予了这些女性支持，他们呼吁提供有关该疾病的针对性信息，认为这是支持的重要工具。结果表明，健康的近亲难以理解与慢性阻塞性肺疾病共处的经历，因为他们大多数时候将呼吸这一简单事实视为理所当然。
