Giesinger Johannes, Kemmler Georg, Meraner Verena, Gamper Eva-Maria, Oberguggenberger Anne, Sperner-Unterweger Barbara, Holzner Bernhard
Department of Psychiatry and Psychotherapy, Innsbruck Medical University, Austria.
Breast Care (Basel). 2009;4(3):148-154. doi: 10.1159/000224158. Epub 2009 Jun 26.
Quality of life (QOL) has become a widely used outcome parameter in the evaluation of treatment modalities in clinical oncology research. By now, many of the practical problems associated with measuring QOL in clinical practice can be overcome by the use of computer-based assessment methods. QOL assessment in oncology is dominated by two measurement systems, the FACT scales and the EORTC QLQ-C30 with its modules. The amount of human resources required to implement routine data collection has been reduced significantly by advanced computer technology allowing data collection in busy clinical practice. Monitoring of QOL can contribute to oncologic care by facilitating detection of physical and psychological problems and tracking the course of disease and treatment over time. Furthermore, the integration of screening for psychosocial problems into QOL monitoring contributes to the identification of patients who are in need of psychooncologic interventions. Computer-based QOL monitoring does not replace the direct physician-patient communication but enables to identify specific impairments and symptoms including psychological problems. Beyond clinical practice, QOL data can be used for research purposes and may help health care planners to determine those patient services that should be maintained or ones that should be developed.
生活质量(QOL)已成为临床肿瘤学研究中评估治疗方式时广泛使用的结果参数。目前,临床实践中与生活质量测量相关的许多实际问题都可以通过使用基于计算机的评估方法来克服。肿瘤学中的生活质量评估主要由两种测量系统主导,即FACT量表和带有其模块的欧洲癌症研究与治疗组织生活质量核心问卷(EORTC QLQ-C30)。先进的计算机技术允许在繁忙的临床实践中进行数据收集,从而显著减少了实施常规数据收集所需的人力资源。生活质量监测有助于肿瘤护理,通过促进身体和心理问题的检测以及随时间跟踪疾病和治疗过程。此外,将心理社会问题筛查纳入生活质量监测有助于识别需要心理肿瘤学干预的患者。基于计算机的生活质量监测并不能取代医生与患者之间的直接沟通,但能够识别包括心理问题在内的特定损伤和症状。除了临床实践,生活质量数据还可用于研究目的,并可能帮助医疗保健规划者确定应维持或应发展的患者服务。