Suppr超能文献

患有听力损失的婴幼儿需要尽早获得语言机会。

Infants and children with hearing loss need early language access.

作者信息

Kushalnagar Poorna, Mathur Gaurav, Moreland Christopher J, Napoli Donna Jo, Osterling Wendy, Padden Carol, Rathmann Christian

机构信息

Department of Health Services, University of Washington, Seattle, USA.

出版信息

J Clin Ethics. 2010 Summer;21(2):143-54.

Abstract

Around 96 percent of children with hearing loss are born to parents with intact hearing, who may initially know little about deafness or sign language. Therefore, such parents will need information and support in making decisions about the medical, linguistic, and educational management of their child. Some of these decisions are time-sensitive and irreversible and come at a moment of emotional turmoil and vulnerability (when some parents grieve the loss of a normally hearing child). Clinical research indicates that a deaf child's poor communication skills can be made worse by increased level of parental depression. Given this, the importance of reliable and up-to-date support for parents' decisions is critical to the overall well-being of their child. In raising and educating a child, parents are often offered an exclusive choice between an oral environment (including assistive technology, speech reading, and voicing) and a signing environment. A heated controversy surrounds this choice, and has since at least the late 19th century, beginning with the International Congress on the Education of the Deaf in Milan, held in 1880. While families seek advice from many sources, including, increasingly, the internet, the primary care physician (PCP) is the professional medical figure the family interacts with repeatedly. The present article aims to help family advisors, particularly the PCP and other medical advisors in this regard. We argue that deaf children need to be exposed regularly and frequently to good language models in both visual and auditory modalities from the time hearing loss is detected and continued throughout their education to ensure proper cognitive, psychological, and educational development. Since there is, unfortunately, a dearth of empirical studies on many of the issues families must confront, professional opinions, backed by what studies do exist, are the only option. We here give our strongly held professional opinions and stress the need for improved research studies in these areas.

摘要

约96%听力受损儿童的父母听力正常,这些父母最初可能对耳聋或手语知之甚少。因此,这类父母在就孩子的医疗、语言和教育管理做出决策时需要信息和支持。其中一些决策具有时间敏感性且不可逆转,而且是在情绪动荡和脆弱的时刻做出的(有些父母会为失去一个听力正常的孩子而悲痛)。临床研究表明,父母抑郁程度的增加会使失聪儿童本就不佳的沟通能力进一步恶化。鉴于此,为父母的决策提供可靠且最新的支持对于孩子的整体幸福至关重要。在养育和教育孩子方面,父母通常只能在口语环境(包括辅助技术、唇读和发声)和手语环境之间做出排他性选择。围绕这一选择存在激烈争议,至少自19世纪末以来就是如此,始于1880年在米兰举行的国际聋人教育大会。虽然家庭会从许多渠道寻求建议,互联网渠道的咨询日益增多,但初级保健医生是家庭反复接触的专业医疗人员。本文旨在帮助家庭顾问,特别是这方面的初级保健医生和其他医疗顾问。我们认为,从发现听力损失之时起,失聪儿童就需要经常且定期地接触视觉和听觉两种模式下的良好语言模型,并在整个教育过程中持续接触,以确保其认知、心理和教育的正常发展。不幸的是,对于家庭必须面对的许多问题,实证研究匮乏,因此现有研究支持的专业意见是唯一选择。我们在此给出我们坚定的专业意见,并强调在这些领域改进研究的必要性。

相似文献

3
Assessing parent interaction with deaf infants: A quantitative survey of UK professional practice.
Int J Lang Commun Disord. 2023 Jul-Aug;58(4):1148-1167. doi: 10.1111/1460-6984.12849. Epub 2023 Jan 28.
4
Responsive parenting intervention after identification of hearing loss by Universal Newborn Hearing Screening: the concept of the Muenster Parental Programme.
Int J Pediatr Otorhinolaryngol. 2013 Dec;77(12):2030-9. doi: 10.1016/j.ijporl.2013.10.002. Epub 2013 Oct 12.
5
Professionals' Perspectives on Supporting Deaf Multilingual Learners and Their Families.
J Deaf Stud Deaf Educ. 2021 Jan 1;26(1):70-84. doi: 10.1093/deafed/enaa025.
7
8
Support for parents of deaf children: Common questions and informed, evidence-based answers.
Int J Pediatr Otorhinolaryngol. 2019 Mar;118:134-142. doi: 10.1016/j.ijporl.2018.12.036. Epub 2018 Dec 29.
10
Bilingual skills of deaf/hard of hearing children from Spain.
Cochlear Implants Int. 2014 Mar;15(2):87-92. doi: 10.1179/1754762813Y.0000000058. Epub 2013 Nov 25.

引用本文的文献

1
Disparity in school children's reading skills in 11 African countries.
PLoS One. 2025 Apr 8;20(4):e0320688. doi: 10.1371/journal.pone.0320688. eCollection 2025.
2
Hearing Screening in Children with Suspected Hearing Loss at a Tertiary Care Centre of Eastern Uttar Pradesh.
Indian J Otolaryngol Head Neck Surg. 2023 Sep;75(3):1704-1706. doi: 10.1007/s12070-023-03680-x. Epub 2023 Mar 27.
3
Stress among Parents of Children with Hearing Loss and How They Deal with It: A Systematic Review.
Int Arch Otorhinolaryngol. 2022 Aug 1;27(1):e166-e177. doi: 10.1055/s-0042-1743273. eCollection 2023 Jan.
4
How do face masks impact communication amongst deaf/HoH people?
Cogn Res Princ Implic. 2022 Sep 5;7(1):81. doi: 10.1186/s41235-022-00431-4.
5
Knowledge, attitude and management of hearing screening in children among family physicians in the Kingdom of Saudi Arabia.
PLoS One. 2021 Aug 31;16(8):e0256647. doi: 10.1371/journal.pone.0256647. eCollection 2021.
7
Sensitivity to Haptic Sound-Localization Cues at Different Body Locations.
Sensors (Basel). 2021 May 28;21(11):3770. doi: 10.3390/s21113770.
8
Quality of Life and Cochlear Implant: Results in Saudi Children.
Cureus. 2020 Dec 8;12(12):e11968. doi: 10.7759/cureus.11968.
9
Mothers' perceptions of universal newborn hearing screening in transitional Albania.
PLoS One. 2020 Aug 21;15(8):e0237815. doi: 10.1371/journal.pone.0237815. eCollection 2020.
10
Neurodevelopmental Aspects and Cortical Auditory Maturation in Children with Cochlear Implants.
Medicina (Kaunas). 2020 Jul 13;56(7):344. doi: 10.3390/medicina56070344.

本文引用的文献

1
Long-term outcomes of cochlear implantation in the preschool years: from elementary grades to high school.
Int J Audiol. 2008 Nov;47 Suppl 2:S21-30. doi: 10.1080/14992020802339167.
2
Theory of mind and language in children with cochlear implants.
J Deaf Stud Deaf Educ. 2009 Spring;14(2):218-36. doi: 10.1093/deafed/enn036. Epub 2008 Sep 16.
3
The relationship between the reading and signing skills of deaf children in bilingual education programs.
J Deaf Stud Deaf Educ. 2008 Fall;13(4):518-30. doi: 10.1093/deafed/enn009. Epub 2008 Apr 8.
4
Executive function and language in deaf children.
J Deaf Stud Deaf Educ. 2008 Summer;13(3):362-77. doi: 10.1093/deafed/enm067. Epub 2008 Feb 4.
5
Preventing disability through understanding international megatrends in Deaf bilingual education.
J Epidemiol Community Health. 2008 Feb;62(2):131-7. doi: 10.1136/jech.2006.059378.
8
Ten-year follow-up of a consecutive series of children with multichannel cochlear implants.
Otol Neurotol. 2007 Aug;28(5):615-28. doi: 10.1097/01.mao.0000281802.59444.02.
10
Childhood Development after Cochlear Implantation (CDaCI) study: design and baseline characteristics.
Cochlear Implants Int. 2007 Jun;8(2):92-116. doi: 10.1179/cim.2007.8.2.92.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验