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听力损失儿童家长的压力及其应对方式:一项系统综述。

Stress among Parents of Children with Hearing Loss and How They Deal with It: A Systematic Review.

作者信息

Gunjawate Dhanshree R, Ravi Rohit, Driscoll Carlie

机构信息

Department of Audiology and Speech-Language Pathology, Kasturba Medical College, Mangalore, Manipal Academy of Higher Education, Manipal, India.

School of Health and Rehabilitation Sciences, University of Queensland, Brisbane, Australia.

出版信息

Int Arch Otorhinolaryngol. 2022 Aug 1;27(1):e166-e177. doi: 10.1055/s-0042-1743273. eCollection 2023 Jan.

DOI:10.1055/s-0042-1743273
PMID:36714900
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9879637/
Abstract

Parenting a child with hearing loss may be accompanied by high stress levels and several challenges.  The present systematic review was performed to compile the existing literature pertaining to parental stress in parents of children with hearing loss and coping strategies.  The databases searched include PubMed/Medline, Scopus, Cochrane Library and Cumulative Index to Nursing, and Allied Health Literature. The systematic review was designed and performed using the Preferred Reporting Items for Systematic Reviews and Meta-analyses statement guidelines. The screening for studies was performed independently by two researchers. Methodological quality appraisal was done using the Mixed methods appraisal tool. Twenty-eight studies were identified and included in the present review, which discussed the stress factors and coping mechanism associated with having child with hearing loss reported by parents. The factors leading to stress were thematically classified into parent/family-related factors, child-related factors, and professionals/service-related factors. The coping strategies were thematically classified into improved support systems and better professional resources.  The present systematic review was an attempt at exploring the various stress causing factors among parents of children with hearing loss. The various coping strategies would help in better planning services for these parents and helping to lessen the stress.

摘要

养育一名失聪儿童可能伴随着高压力水平和诸多挑战。本系统综述旨在汇编有关失聪儿童家长的父母压力及应对策略的现有文献。检索的数据库包括PubMed/Medline、Scopus、Cochrane图书馆以及护理与联合健康文献累积索引。本系统综述依据系统评价和Meta分析的首选报告项目声明指南进行设计和实施。由两名研究人员独立进行研究筛选。使用混合方法评估工具进行方法学质量评估。本综述确定并纳入了28项研究,这些研究讨论了家长报告的与养育失聪儿童相关的压力因素和应对机制。导致压力的因素按主题分为家长/家庭相关因素、儿童相关因素和专业人员/服务相关因素。应对策略按主题分为改善支持系统和更好的专业资源。本系统综述旨在探索失聪儿童家长中各种压力成因。各种应对策略将有助于为这些家长更好地规划服务并减轻压力。

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A Phenomenological Study of Parenting Stress Among Korean Mothers of Deaf Children.韩国失聪儿童母亲育儿压力的现象学研究
Am Ann Deaf. 2018;163(4):440-462. doi: 10.1353/aad.2018.0028.
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Bedouin Hearing Parents of Children With Hearing Loss: Stress, Coping, and Quality of Life.听力受损儿童的贝都因族听力正常父母:压力、应对方式及生活质量
Psychological Health of Deaf Pre-Teens and Teenagers with Cochlear Implants and Maternal Psychological Features: A Pilot Study.
植入人工耳蜗的失聪青少年及儿童的心理健康状况与母亲心理特征:一项初步研究。
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Parental Stress, Learned Helplessness, and Perceived Social Support in Mothers of Children with Hearing Loss and Mothers of Typically Developing Children.听力受损儿童母亲与发育正常儿童母亲的父母压力、习得性无助感和感知到的社会支持
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Parental/Caregiver Satisfaction and Anxiety with Newborn Hearing Screening Program in Dakshina Karnataka, India - A Questionnaire Based Study.印度南卡纳塔克邦新生儿听力筛查项目中家长/照顾者的满意度与焦虑情况——一项基于问卷调查的研究
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Psychological burden of hearing-impaired children and their parents through the COVID-19 pandemic.新冠疫情期间听力受损儿童及其父母的心理负担
Front Public Health. 2024 Sep 17;12:1403729. doi: 10.3389/fpubh.2024.1403729. eCollection 2024.
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Cost-effectiveness of portable-automated ABR for universal neonatal hearing screening in India.印度使用便携式自动听性脑干反应进行普遍新生儿听力筛查的成本效益分析。
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