Karolinska Institute, Department of Occupational Therapy, Stockholm, Sweden.
Palliat Support Care. 2010 Sep;8(3):345-52. doi: 10.1017/S1478951510000143.
In many studies, everyday life has been shown to be of great significance in the context of life-threatening cancer. The aim of this study was to investigate how people with cancer who are receiving palliative care engage in and undertake activities in their everyday lives.
This is a qualitative interview study adopting a grounded theory approach. The sample was composed of participants receiving services from palliative hospital-based home care and day care services. A total of 47 individuals were interviewed.
Despite experiencing the threat of progressive loss of functioning, the participants were striving to remain involved in and to be active in everyday life. Continued involvement in everyday life with lowered expectations concerning performance gave the participants the possibility to continue doing daily activities as well as to perform new and engaging activities that were a source of pleasure and enabled the patients to feel a sense of competence.
This study has demonstrated the power of being involved in everyday life activities. The proposed model, explaining individuals' desire to continue to live an active life despite a progressive loss of functioning, can provide a model to help the reasoning of professionals when supporting patients in their everyday life.
在许多研究中，日常生活在危及生命的癌症背景下被证明具有重要意义。本研究旨在探讨接受姑息治疗的癌症患者如何参与和开展日常生活中的活动。
这是一项采用扎根理论方法的定性访谈研究。样本由接受姑息医院家庭护理和日托服务的参与者组成。共有 47 人接受了采访。
尽管面临功能逐渐丧失的威胁，但参与者仍努力参与并积极参与日常生活。降低对表现的期望而持续参与日常生活，使参与者有可能继续进行日常活动，并开展新的、引人入胜的活动，这些活动是快乐和能力感的来源。
本研究证明了参与日常生活活动的力量。该模型解释了个体在功能逐渐丧失的情况下继续积极生活的愿望，可以为专业人员在支持患者日常生活时提供一种推理模型。
