The Western Australian Centre for Cancer and Palliative Care, Curtin Health Innovation Research Institute, Curtin University, Perth, Australia.
Health Soc Care Community. 2012 Nov;20(6):599-606. doi: 10.1111/j.1365-2524.2012.01074.x. Epub 2012 Jul 14.
Palliative care patients who live alone report greater psychological distress, and are less likely to die at home than those living with a family carer. However, there is a lack of research on the value of models of care that specifically address this disadvantage. This article describes the experiences of terminally ill 'home alone' people using one of two models of care aimed at maintaining participants' need for independent living, focusing on the effect of these two models of care on their physical, social and emotional needs. Twenty six palliative care patients of Silver Chain Hospice Care, in Western Australia, were randomly assigned to either having a personal alarm or additional care-aide hours in their home. An in-depth qualitative study was conducted in two phases in 2010 using face-to-face interviews. The care-aide model of care resulted in benefits such as easing the burden of everyday living; supporting well-being; enhancing quality of life and preserving a sense of dignity; and reducing loneliness and isolation. The personal alarm model of care imparted a sense of security; provided peace of mind; and helped to deal with feelings of isolation. Participants in both groups felt that they could remain at home longer. By providing a safer, more secure environment through the use of a personal alarm or additional care-aide hours, patients were able to continue their activities of daily living, could build a sense of 'normality' into their lives, and they could live independently through support and dignity.
独自生活的姑息治疗患者报告称心理困扰更大，并且比与家庭护理人员一起生活的患者更不可能在家中去世。然而，缺乏专门针对这一劣势的护理模式价值的研究。本文描述了使用两种旨在维持参与者独立生活需求的护理模式之一的绝症“独自在家”患者的体验，重点介绍了这两种护理模式对他们的身体、社会和情感需求的影响。西澳大利亚州 Silver Chain 临终关怀护理的 26 名姑息治疗患者被随机分配到家中增加个人警报或额外护理人员小时数。2010 年，使用面对面访谈进行了两阶段深入定性研究。护理人员的护理模式带来了一些好处，例如减轻日常生活负担；支持幸福感；提高生活质量并保持尊严感；减少孤独和孤立。个人警报护理模式赋予了安全感；提供了安心；并有助于应对孤立感。两组参与者都觉得他们可以在家呆更长时间。通过使用个人警报器或额外的护理人员小时数提供更安全、更安全的环境，患者能够继续他们的日常生活，可以将“正常”感融入他们的生活，并通过支持和尊严实现独立生活。
