Department of Psychology, Insititute of Psychiatry, King's College London, UK.
Palliat Support Care. 2010 Dec;8(4):433-40. doi: 10.1017/S1478951510000301. Epub 2010 Sep 28.
This project sought to better understand the nature of medical care from the perspective of people approaching the end of life.
We asked 13 people who were dying (and a family member for each) to describe their care and the ways in which doctors' behavior fosters or inhibits the feeling that they were cared for as individuals. Interviews took a phenomenological approach. Data analysis was thematic.
Examples used by participants as evidence of care varied widely and showed the potentially complex nature of quality care. Participants' descriptions reflect the many ways people can impart and experience care as unique individuals in the medical context. They also provide clear examples of what uncaring behaviour looks and feels like.
The importance of care was clearly illustrated through descriptions of the benefits of caring behavior and the negative consequences of uncaring behavior. In order to demonstrate the empathy and compassion expected and assumed of medical graduates and engender a feeling of being cared for among their patients, doctors need to invite and develop a relationship with those they are caring for. There needs to be a focus on each member of the caring relationship primarily as individual human beings.
本项目旨在从接近生命终点的人群的角度更好地了解医疗保健的性质。
我们请 13 名临终患者（每位患者的家属各 1 名）描述他们的护理情况，以及医生的行为如何促进或抑制他们作为个体被照顾的感觉。访谈采用现象学方法。数据分析采用主题分析法。
参与者用作护理证据的例子差异很大，表明高质量护理可能具有复杂的性质。参与者的描述反映了人们在医疗环境中作为独特个体可以传达和体验护理的许多方式。它们还清楚地举例说明了不关心的行为是什么样子和感觉。
通过描述关心行为的好处和不关心行为的负面后果，清楚地说明了护理的重要性。为了表现出对医学毕业生的期望和假设的同理心和同情心，并在他们的患者中产生被照顾的感觉，医生需要邀请并与他们所照顾的人建立关系。需要关注护理关系中的每一个成员，主要是作为个体的人。
