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多发性硬化症的功能障碍和残疾。

Functioning and disability in multiple sclerosis.

机构信息

Department of Rehabilitation Medicine, Charles University, Albertov 7, Prague, 128 00 Czech Republic.

出版信息

Disabil Rehabil. 2010;32 Suppl 1:S59-67. doi: 10.3109/09638288.2010.511689. Epub 2010 Oct 7.

DOI:10.3109/09638288.2010.511689
PMID:20929340
Abstract

PURPOSE

To describe functioning and disability in patients with multiple sclerosis (MS) according to the model endorsed by the International Classification of Functioning Disability and Health (ICF).

METHODS

Adult patients with MS were consecutively enrolled. The Expanded Disability Status Scale (EDSS), the WHO Disability Assessment Schedule II (WHO-DAS II) and the ICF checklist were administered in individual sessions. Descriptive analyses were performed to report on EDSS and WHO-DAS II scores. ICF categories reported as a problem by more than 20% of patients were described in detail.

RESULTS

One hundred patients (70 females, mean age 41.7), 73 with relapsing-remitting MS were enrolled. Mean WHO-DAS II score was 10.6 and 58 ICF categories were selected: 23 Body Functions and Structures, 21 Activities and Participation and 14 Environmental Factors.

CONCLUSIONS

The ICF can be successfully implemented in clinical and rehabilitation of patients with MS, because it enables to describe its multiple facets. Little differences between capacity and performance in ICF categories connected with activities of daily living, and presence of technical aids and other environmental factors are reported. On the contrary, in categories related to relationships, performance was worse than capacity thus revealing attitudinal barriers.

摘要

目的

根据国际功能、残疾和健康分类(ICF)所认可的模式,描述多发性硬化症(MS)患者的功能和残疾情况。

方法

连续纳入成年 MS 患者。在单独的会议中,对扩展残疾状况量表(EDSS)、世界卫生组织残疾评定量表 II(WHO-DAS II)和 ICF 检查表进行了评估。对 EDSS 和 WHO-DAS II 评分进行了描述性分析。详细描述了超过 20%的患者报告有问题的 ICF 类别。

结果

共纳入 100 名患者(70 名女性,平均年龄 41.7 岁),其中 73 名患者为复发缓解型 MS。平均 WHO-DAS II 评分为 10.6,选择了 58 个 ICF 类别:23 个身体功能和结构、21 个活动和参与以及 14 个环境因素。

结论

ICF 可以成功地应用于 MS 患者的临床和康复中,因为它能够描述其多个方面。在与日常生活活动相关的活动和参与类别中,能力和表现之间几乎没有差异,并且存在技术辅助和其他环境因素。相反,在与人际关系相关的类别中,表现不如能力好,这揭示了态度障碍。

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