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父母对自闭症谱系障碍风险幼儿进行全面诊断评估的看法。

Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder.

机构信息

University of Minnesota, Minneapolis, MN, USA.

Kennedy Krieger Institute, 1750 E. Fairmount Avenue, Baltimore, MD, 21231, USA.

出版信息

J Autism Dev Disord. 2019 May;49(5):1763-1777. doi: 10.1007/s10803-018-3851-z.

Abstract

Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.

摘要

家长对儿童神经发育评估的满意度可能会影响其对干预措施的追求。本研究采用《评估后满意度问卷》调查了 257 名(自闭症组 128 名)有自闭症风险的幼儿神经发育评估的家长满意度,该问卷收集了定量和定性信息。返回问卷的少数族裔/少数民族家长少于非少数族裔家长。因子分析表明,一个因素模型(总分),在诊断、自闭症严重程度、儿童认知或适应延迟、家庭种族/民族、母亲教育、家庭年收入或父母压力方面差异无统计学意义。对 24 个单项的检查显示,只有一个单项存在种族/民族差异;少数族裔家长认为评估满足他们需求的程度较低。定性数据强调了充分解释诊断/建议以及提供直接和明确反馈的重要性。

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