Amro Raed, Cox Carol L, Waddington Kathryn, Siriwardena Dilani
Accident and Emergency Department, Moorfields Eye Hospital NHS Foundation Trust, London.
Br J Nurs. 2010;19(20):1287-92. doi: 10.12968/bjon.2010.19.20.79682.
Expert patient programmes (EPPs) are becoming an increasingly important aspect of chronic disease management, resulting in improved health outcomes for patients. Patients with chronic open angle glaucoma (COAG) require lifelong therapy. However, to date, no EPPs have been designed specifically for patients with chronic eye conditions like COAG. This article describes the development and implementation of the Glaucoma Expert Patient Programme (GEPP), a glaucoma-specific educational self-management programme which aims to improve glaucoma patients' knowledge, self-management skills, expectations and adherence to treatment. A review of theoretical frameworks and models which underpin the design, use and conduct of EPPs was undertaken, and the GEPP was designed based on the model by Kate Lorig (2003). The result is an educational programme which offers COAG patients a different perspective on their condition and supports them with knowledge, skills and strategies to better manage their condition on a daily basis.
专家患者项目(EPPs)正日益成为慢性病管理的一个重要方面,从而改善患者的健康状况。慢性开角型青光眼(COAG)患者需要终身治疗。然而,迄今为止,尚未专门为像COAG这样的慢性眼病患者设计EPPs。本文描述了青光眼专家患者项目(GEPP)的开发与实施,这是一个针对青光眼的教育性自我管理项目,旨在提高青光眼患者的知识、自我管理技能、期望以及对治疗的依从性。对支撑EPPs设计、使用和实施的理论框架与模型进行了综述,并基于凯特·洛里格(2003年)的模型设计了GEPP。结果是一个教育项目,为COAG患者提供了对自身病情的不同视角,并在知识、技能和策略方面为他们提供支持,以便他们在日常生活中更好地管理病情。