Boulet Louis-Philippe
Institut Universitaire de Cardiologie et de Pneumologie de Québec, Université Laval, Québec, QC, Canada G1V 3G7.
Can Respir J. 2016;2016:9454506. doi: 10.1155/2016/9454506. Epub 2016 Apr 14.
The concept of "expert patient" has been developed in the last two decades to define a patient who has a significant knowledge of his/her disease and treatment in addition to self-management skills. However, this concept has evolved over the last years, and these patients are now considered, not only to be more efficient in the management of their own condition and communicating effectively with health professionals, but to also act as educators for other patients and as resources for the last, provide feedback on care delivery, and be involved in the production and implementation of practice guidelines, as well as in the development and conduct of research initiatives. There are some barriers, however, to the integration of this new contributor to the health care team, and specific requirements need to be considered for an individual to be considered as an expert. This new player has, however, a potentially important role to improve current care, particularly in respiratory health.
“专家型患者”的概念是在过去二十年中形成的，用于定义除具备自我管理技能外，还对自身疾病及治疗有深入了解的患者。然而，这一概念在过去几年中不断演变，如今这些患者不仅被认为在自身病情管理和与医护人员有效沟通方面更具效率，还被视为其他患者的教育者以及医护人员的资源提供者，能够对医疗服务提供反馈，参与实践指南的制定与实施，以及研究项目的开展。然而，将这位医疗团队的新成员融入其中存在一些障碍，要将个人视为专家还需考虑特定要求。不过，这位新角色在改善当前医疗服务，尤其是在呼吸健康方面，可能发挥重要作用。
