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产前筛查:专业标准与父母选择的限度

Prenatal screening: professional standards and the limits of parental choice.

作者信息

Botkin J R

机构信息

Department of Pediatrics, Case Western Reserve University, Cleveland, Ohio.

出版信息

Obstet Gynecol. 1990 May;75(5):875-80.

PMID:2109295
Abstract

Medicine has a strong tradition of respect for parental autonomy in reproductive decisions. As prenatal diagnostic technology develops, the physician's obligation to the prospective parents with respect to prenatal screening must be determined, and standards for disclosure of diagnostic capabilities and results must be developed. This article explores potential justifications for limits on parental choice in prenatal screening. Information about screening capabilities can be limited appropriately when resources do not exist to ensure accurate testing and counseling. Other policy limits to parental information and choice based on risk levels, cost-benefit analyses, or harms to the parent-child relationship cannot be established without broad consensus on complex ethical issues. Limits to parental choice may be more appropriately applied through the moral values of individual physicians in their provision of diagnostic services.

摘要

医学在生殖决策方面有着尊重父母自主权的悠久传统。随着产前诊断技术的发展,必须确定医生在产前筛查方面对准父母的义务,并且必须制定关于诊断能力和结果披露的标准。本文探讨了限制父母在产前筛查中选择的潜在理由。当没有资源确保准确检测和咨询时,关于筛查能力的信息可以适当地加以限制。基于风险水平、成本效益分析或对亲子关系的损害而对父母信息和选择进行的其他政策限制,如果没有就复杂的伦理问题达成广泛共识,就无法确立。对父母选择的限制可能更适合通过个体医生在提供诊断服务时的道德价值观来实施。

相似文献

1
Prenatal screening: professional standards and the limits of parental choice.产前筛查:专业标准与父母选择的限度
Obstet Gynecol. 1990 May;75(5):875-80.
2
Fetal privacy and confidentiality.胎儿隐私与保密。
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Ethical considerations in prenatal diagnosis.产前诊断中的伦理考量。
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An ethically justified, clinically comprehensive management strategy for third-trimester pregnancies complicated by fetal anomalies.针对孕晚期合并胎儿畸形的妊娠制定的符合伦理道德且临床全面的管理策略。
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Fatal knowledge? Prenatal diagnosis and sex selection.致命的认知?产前诊断与性别选择。
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Examining the pros and cons of parental responsibility for genetic health.审视父母对基因健康承担责任的利弊。
Hastings Cent Rep. 1974 Feb;4(1):9-11.
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Ethical issues in genetic screening and antenatal diagnosis.基因筛查和产前诊断中的伦理问题。
Clin Obstet Gynecol. 1981 Dec;24(4):1151-68. doi: 10.1097/00003081-198112000-00012.
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[Prenatal diagnostics and information to parents].[产前诊断及向父母提供信息]
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Reproductive cloning combined with genetic modification.生殖克隆与基因改造相结合。
J Med Ethics. 2005 Nov;31(11):654-8. doi: 10.1136/jme.2004.011189.
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Prenatal screening for cystic fibrosis carriers: an economic evaluation.囊性纤维化携带者的产前筛查:一项经济学评估。
Am J Hum Genet. 1998 Oct;63(4):1160-74. doi: 10.1086/302042.