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癌症患者家属:他们知道什么,他们如何知道,以及他们想知道什么。

Family members of patients with cancer: what they know, how they know and what they want to know.

机构信息

School of Nursing & Midwifery, University College Cork, Cork, Ireland.

出版信息

Eur J Oncol Nurs. 2011 Dec;15(5):428-41. doi: 10.1016/j.ejon.2010.10.009. Epub 2010 Nov 19.

DOI:10.1016/j.ejon.2010.10.009
PMID:21094087
Abstract

BACKGROUND

Recent changes in healthcare management generally and in cancer care in particular, indicate a major shift in the clinical management of cancer from hospitals and healthcare professionals (HCPs) to patients and families. In light of these changes national and international policies and reports by the Department of Health and Children (2001, 2006) and the World Health Organisation (2004) have recommended that HCPs support family members (FMs) to care for loved ones. The purpose of this review therefore was to explore the extent to which FMs' needs are realised by HCPs in practice.

OBJECTIVES

To examine recent research (2000-2010) in relation to; the type of information that FMs of patients with cancer generally seek, how they seek this information from HCPs, and, FMs' experiences of communicating with HCPs in this context.

METHODS

A review of the literature was conducted using key databases Medline, Pub med, Psych-Info and CINAHL.

RESULTS

Thirty four papers were included in the review. Overall the studies demonstrated that FMs of patients with cancer have similar information needs and demonstrate similar strategies for seeking information. While many FMs report positive communication experiences with HCPs and have information needs met, the majority of FMs report negative communication encounters with HCPs.

CONCLUSION

HCPs are highly significant in the lives of FMs of patients with cancer. The review concludes with identifying; FMs most wanted information needs, their struggles with accessing HCPs and the type of communication encounters FMs most desire to have with HCPs. Recommendations for education, practice and research are addressed.

摘要

背景

最近医疗保健管理的变化,尤其是癌症护理方面的变化,表明癌症的临床管理从医院和医疗保健专业人员(HCPs)向患者和家庭发生了重大转变。鉴于这些变化,国家和国际政策以及卫生部和儿童部(2001 年、2006 年)和世界卫生组织(2004 年)的报告建议 HCPs 支持家庭成员(FMs)照顾亲人。因此,本次审查的目的是探讨 HCPs 在实践中在何种程度上满足了 FMs 的需求。

目的

检查最近(2000-2010 年)的研究,涉及:癌症患者的 FMs 通常寻求的信息类型、他们如何从 HCPs 那里获取这些信息,以及在这种情况下 FMs 与 HCPs 沟通的经验。

方法

使用 Medline、Pub med、Psych-Info 和 CINAHL 等关键数据库进行文献回顾。

结果

综述共纳入 34 篇论文。总体而言,这些研究表明,癌症患者的 FMs 具有相似的信息需求,并表现出相似的信息寻求策略。尽管许多 FMs 报告与 HCPs 进行积极的沟通并满足了他们的信息需求,但大多数 FMs 报告与 HCPs 的沟通遭遇负面。

结论

HCPs 在癌症患者 FMs 的生活中具有重要意义。审查最后确定了;FMs 最想要的信息需求、他们在接触 HCPs 方面的困难,以及 FMs 最希望与 HCPs 进行的沟通类型。提出了教育、实践和研究的建议。

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