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Use of the Family Interaction Macro-coding System with families of adolescents: psychometric properties among pediatric and healthy populations.使用家庭互动宏观编码系统对青少年家庭进行研究：在儿科和健康人群中的心理测量学特性。
J Pediatr Psychol. 2011 Jun;36(5):539-51. doi: 10.1093/jpepsy/jsq106. Epub 2010 Nov 22.
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Observed and perceived dyadic and systemic functioning in families of preadolescents with spina bifida.患有脊柱裂的青春期前儿童家庭中观察到和感知到的二元及系统功能。
J Pediatr Psychol. 2002 Mar;27(2):177-89. doi: 10.1093/jpepsy/27.2.177.
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Development of an Observational Parental Scaffolding Measure for Youth with Spina Bifida.为脊柱裂青少年制定观察性父母支架措施的发展。
J Pediatr Psychol. 2020 Jul 1;45(6):695-706. doi: 10.1093/jpepsy/jsaa042.
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Resilience and Disruption in Observed Family Interactions in Youth With and Without Spina Bifida: An Eight-Year, Five-Wave Longitudinal Study.患有和未患有脊柱裂青少年的家庭互动观察中的复原力与干扰：一项为期八年、五波次的纵向研究。
J Pediatr Psychol. 2015 Oct;40(9):943-55. doi: 10.1093/jpepsy/jsv033. Epub 2015 Apr 24.
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Family Environment Scale Parental Ratings of Conflict among Latino Families of Depressed Adolescents with Type 1 Diabetes.1型糖尿病抑郁青少年拉丁裔家庭中家庭环境量表的父母冲突评分
P R Health Sci J. 2018 Dec;37(4):200-207.
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Individual, family, and peer factors associated with the quality of sibling relationships in families of youths with spina bifida.与脊柱裂青年家庭中兄弟姐妹关系质量相关的个人、家庭和同伴因素。
J Fam Psychol. 2009 Feb;23(1):39-47. doi: 10.1037/a0014381.
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Psychometric properties of the Portuguese adaptation of General Functioning of Family Assessment Device: A comparative study.家庭评估装置一般功能的葡萄牙语适应性的心理测量学特性：一项比较研究。
Fam Syst Health. 2020 Jun;38(2):162-171. doi: 10.1037/fsh0000471. Epub 2020 Apr 13.
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A longitudinal study of pubertal timing, parent-child conflict, and cohesion in families of young adolescents with spina bifida.一项关于脊柱裂青少年家庭中青春期发育时间、亲子冲突与亲密度的纵向研究。
J Pediatr Psychol. 2002 Jul-Aug;27(5):461-73. doi: 10.1093/jpepsy/27.5.461.
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Medical adherence in young adolescents with spina bifida: longitudinal associations with family functioning.青少年脊柱裂患者的医疗依从性：与家庭功能的纵向关联。
J Pediatr Psychol. 2010 Mar;35(2):167-76. doi: 10.1093/jpepsy/jsp054. Epub 2009 Jun 25.
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Discrepancies in mother and child perceptions of spina bifida medical responsibilities during the transition to adolescence: associations with family conflict and medical adherence.母亲和儿童在青少年过渡期对脊柱裂医疗责任的认知差异：与家庭冲突和医疗依从性的关联。
J Pediatr Psychol. 2013 Sep;38(8):859-70. doi: 10.1093/jpepsy/jst047. Epub 2013 Jul 10.
引用本文的文献
1
Self-management in youth with spina bifida: predictors of health and quality of life outcomes.脊柱裂青年的自我管理：健康及生活质量结果的预测因素
Disabil Rehabil. 2025 Aug 14:1-18. doi: 10.1080/09638288.2025.2547396.
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Activating Adolescent and Young Adult Involvement with Cancer Care Responsibilities: A Dyadic Qualitative Study with Caregivers.激活青少年和青年癌症护理责任的参与：照顾者的双定性研究。
J Adolesc Young Adult Oncol. 2024 Aug;13(4):683-692. doi: 10.1089/jayao.2023.0139. Epub 2024 May 8.
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Trajectories of self-management and independence in youth with spina bifida: Family-related predictors of growth.青年脊柱裂患者自我管理和独立的轨迹：与家庭相关的生长预测因素。
Res Nurs Health. 2024 Aug;47(4):435-449. doi: 10.1002/nur.22387. Epub 2024 Apr 16.
4
Predictors of Distinct Trajectories of Medical Responsibility in Youth with Spina Bifida.预测青少年脊柱裂患者医疗责任的不同轨迹。
J Pediatr Psychol. 2020 Nov 1;45(10):1153-1165. doi: 10.1093/jpepsy/jsaa065.
5
Development of an Observational Parental Scaffolding Measure for Youth with Spina Bifida.为脊柱裂青少年制定观察性父母支架措施的发展。
J Pediatr Psychol. 2020 Jul 1;45(6):695-706. doi: 10.1093/jpepsy/jsaa042.
6
Pathways by which Maternal Factors are Associated With Youth Spina Bifida-Related Responsibility.母体因素与青少年脊柱裂相关责任之间的关联途径。
J Pediatr Psychol. 2020 Jul 1;45(6):610-621. doi: 10.1093/jpepsy/jsaa020.
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Longitudinal associations between neuropsychological functioning and medical responsibility in youth with spina bifida: The moderational role of parenting behaviors.脊柱裂青少年神经心理功能与医疗责任之间的纵向关联：养育行为的调节作用。
Child Neuropsychol. 2020 Nov;26(8):1026-1046. doi: 10.1080/09297049.2020.1751098. Epub 2020 Apr 19.
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Cultural Considerations for Autonomy and Medical Adherence in a Young Palestinian American Muslim Female With Spina Bifida: A Longitudinal Case Study in a Research Context.一名患有脊柱裂的年轻巴勒斯坦裔美国穆斯林女性在自主性和医疗依从性方面的文化考量：一项研究背景下的纵向案例研究
Clin Pract Pediatr Psychol. 2018 Dec;6(4):386-397. doi: 10.1037/cpp0000250.
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Featured Article: Psychosocial and Family Functioning Among Latino Youth With Spina Bifida.重点文章：脊柱裂拉丁裔青少年的社会心理和家庭功能。
J Pediatr Psychol. 2018 Mar 1;43(2):105-119. doi: 10.1093/jpepsy/jsx096.
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Social Skills in Youth With Spina Bifida: A Longitudinal Multimethod Investigation Comparing Biopsychosocial Predictors.青年脊柱裂患者的社交技能：比较生物心理社会预测因素的纵向多方法研究。
J Pediatr Psychol. 2017 Nov 1;42(10):1133-1143. doi: 10.1093/jpepsy/jsx069.
本文引用的文献
1
Exploring self-management characteristics in youths with type 1 diabetes mellitus: does membership in a glycemic control category matter?探究 1 型糖尿病青少年的自我管理特征：血糖控制类别会有影响吗？
Pediatr Diabetes. 2010 Dec;11(8):536-43. doi: 10.1111/j.1399-5448.2010.00638.x.
2
A power primer.强力底漆。
Psychol Bull. 1992 Jul;112(1):155-9. doi: 10.1037//0033-2909.112.1.155.
3
The impact of modifiable family factors on glycemic control among youth with type 1 diabetes.可改变的家庭因素对1型糖尿病青少年血糖控制的影响。
Pediatr Diabetes. 2008 Aug;9(4 Pt 2):373-81. doi: 10.1111/j.1399-5448.2008.00370.x.
4
Testing the Biobehavioral Family Model in pediatric asthma: pathways of effect.在儿童哮喘中测试生物行为家庭模型：作用途径
Fam Process. 2008 Mar;47(1):21-40. doi: 10.1111/j.1545-5300.2008.00237.x.
5
Editorial: Journal of Pediatric Psychology statement of purpose--section on family influences and adaptation.社论：《儿科心理学杂志》宗旨声明——家庭影响与适应部分
J Pediatr Psychol. 2008 Jan-Feb;33(1):26-30. doi: 10.1093/jpepsy/jsm090. Epub 2007 Oct 23.
6
Evidence-based assessment in pediatric psychology: family measures.儿科心理学中的循证评估：家庭测量方法
J Pediatr Psychol. 2008 Oct;33(9):1046-61; discussion 1062-4. doi: 10.1093/jpepsy/jsm083. Epub 2007 Sep 28.
7
Predictors of parenting behavior trajectories among families of young adolescents with and without spina bifida.患有和未患有脊柱裂的青少年家庭中养育行为轨迹的预测因素。
J Pediatr Psychol. 2006 Nov-Dec;31(10):1057-71. doi: 10.1093/jpepsy/jsj011. Epub 2006 Nov 6.
8
Decision-making in normal and pathologic families; a study.正常家庭与病理家庭中的决策；一项研究
Arch Gen Psychiatry. 1963 Jan;8:68-73. doi: 10.1001/archpsyc.1963.01720070076008.
9
A multimethod, multi-informant, and multidimensional perspective on psychosocial adjustment in preadolescents with spina bifida.对患有脊柱裂的青春期前儿童心理社会适应的多方法、多信息提供者和多维度视角。
J Consult Clin Psychol. 2003 Aug;71(4):782-96. doi: 10.1037/0022-006x.71.4.782.
10
A longitudinal study of pubertal timing, parent-child conflict, and cohesion in families of young adolescents with spina bifida.一项关于脊柱裂青少年家庭中青春期发育时间、亲子冲突与亲密度的纵向研究。
J Pediatr Psychol. 2002 Jul-Aug;27(5):461-73. doi: 10.1093/jpepsy/27.5.461.
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