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Discrepancies in mother and child perceptions of spina bifida medical responsibilities during the transition to adolescence: associations with family conflict and medical adherence.母亲和儿童在青少年过渡期对脊柱裂医疗责任的认知差异:与家庭冲突和医疗依从性的关联。
J Pediatr Psychol. 2013 Sep;38(8):859-70. doi: 10.1093/jpepsy/jst047. Epub 2013 Jul 10.
2
Individual adjustment, parental functioning, and perceived social support in Hispanic and non-Hispanic white mothers and fathers of children with spina bifida.西班牙裔和非西班牙裔白种人患有脊柱裂的儿童的母亲和父亲的个体调整、父母功能和感知社会支持。
J Pediatr Psychol. 2012 Aug;37(7):769-78. doi: 10.1093/jpepsy/jsr083. Epub 2011 Oct 11.
3
Adolescent development and family functioning in youth with spina bifida.患有脊柱裂青少年的青春期发育与家庭功能
J Pediatr Rehabil Med. 2008;1(4):291-302.
4
Use of the Family Interaction Macro-coding System with families of adolescents: psychometric properties among pediatric and healthy populations.使用家庭互动宏观编码系统对青少年家庭进行研究:在儿科和健康人群中的心理测量学特性。
J Pediatr Psychol. 2011 Jun;36(5):539-51. doi: 10.1093/jpepsy/jsq106. Epub 2010 Nov 22.
5
Mother-adolescent agreement regarding decision-making autonomy: a longitudinal comparison of families of adolescents with and without spina bifida.母亲与青少年在决策自主性方面的共识:有无脊柱裂青少年家庭的纵向比较。
J Pediatr Psychol. 2011 Apr;36(3):277-88. doi: 10.1093/jpepsy/jsq093. Epub 2010 Oct 13.
6
Trajectories of psychosocial adjustment in adolescents with spina bifida: a 6-year, four-wave longitudinal follow-up.青少年脊柱裂患者心理社会适应轨迹:一项 6 年 4 波纵向随访研究。
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7
Psychosocial and family functioning in spina bifida.脊柱裂患者的心理社会及家庭功能
Dev Disabil Res Rev. 2010;16(1):40-6. doi: 10.1002/ddrr.90.
8
Correlates of depressive and anxiety symptoms in young adults with spina bifida.脊柱裂青少年抑郁和焦虑症状的相关因素。
J Pediatr Psychol. 2010 Aug;35(7):778-89. doi: 10.1093/jpepsy/jsp094. Epub 2009 Oct 30.
9
Trajectories of family processes across the adolescent transition in youth with spina bifida.青少年脊柱裂患者青春期过渡期间家庭过程的轨迹。
J Fam Psychol. 2009 Oct;23(5):726-38. doi: 10.1037/a0016116.
10
Trajectories of autonomy development across the adolescent transition in children with spina bifida.脊柱裂患儿青春期过渡阶段自主性发展轨迹
Rehabil Psychol. 2009 Feb;54(1):16-27. doi: 10.1037/a0014279.

患有和未患有脊柱裂青少年的家庭互动观察中的复原力与干扰:一项为期八年、五波次的纵向研究。

Resilience and Disruption in Observed Family Interactions in Youth With and Without Spina Bifida: An Eight-Year, Five-Wave Longitudinal Study.

作者信息

Lennon Jaclyn M, Murray Caitlin B, Bechtel Colleen F, Holmbeck Grayson N

机构信息

Department of Psychology, Loyola University Chicago

Department of Psychology, Loyola University Chicago.

出版信息

J Pediatr Psychol. 2015 Oct;40(9):943-55. doi: 10.1093/jpepsy/jsv033. Epub 2015 Apr 24.

DOI:10.1093/jpepsy/jsv033
PMID:25914210
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4580757/
Abstract

OBJECTIVE

To examine differences between families of youth with spina bifida (SB) and families of typically developing (TD) youth on family-, parent-, and youth-level variables across preadolescence and adolescence.

METHODS

Participants were 68 families of youth with SB and 68 families of TD youth. Ratings of observed family interactions were collected every 2 years at 5 time points (Time 1: ages 8-9 years; Time 5: ages 16-17 years).

RESULTS

For families of youth with SB: families displayed less cohesion and more maternal psychological control during preadolescence (ages 8-9 years); parents presented as more united and displayed less dyadic conflict, and youth displayed less conflict behavior during the transition to adolescence (ages 10-13 years); mothers displayed more behavioral control during middle (ages 14-15 years) and late (ages 16-17 years) adolescence; youth displayed less engagement and more dependent behavior at every time point.

CONCLUSIONS

Findings highlight areas of resilience and disruption in families of youth with SB across adolescence.

摘要

目的

研究患有脊柱裂(SB)的青少年家庭与发育正常(TD)的青少年家庭在青春期前和青春期的家庭、父母及青少年层面变量上的差异。

方法

参与者包括68个患有脊柱裂的青少年家庭和68个发育正常的青少年家庭。在5个时间点(时间1:8 - 9岁;时间5:16 - 17岁)每2年收集一次观察到的家庭互动评分。

结果

对于患有脊柱裂的青少年家庭:在青春期前(8 - 9岁),家庭凝聚力较低,母亲的心理控制较多;在向青春期过渡阶段(10 - 13岁),父母表现得更加团结,二元冲突较少,青少年的冲突行为也较少;在青春期中期(14 - 15岁)和晚期(16 - 17岁),母亲表现出更多的行为控制;在每个时间点,青少年的参与度较低,依赖行为较多。

结论

研究结果突出了患有脊柱裂的青少年家庭在整个青春期的恢复力和干扰方面的情况。