Center for the Promotion of Treatment Adherence and Self-Management, Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229-3039, USA.
Health Soc Care Community. 2011 Jan;19(1):80-8. doi: 10.1111/j.1365-2524.2010.00951.x. Epub 2010 Sep 9.
The objective of this study was to examine patient- and parent-perceived factors that impact adherence to inflammatory bowel disease treatment using a qualitative descriptive individual interview approach. Sixteen adolescents and their parents were recruited from May through August 2007 and interviewed about medication adherence using an open-ended semi-structured interview format. Interviews were audio recorded, transcribed, and coded into themes. Parent-child dyads identified forgetting, interfering activities, parent-child conflict and oppositional behaviour and inadequate planning for treatment as challenges to adherence. Participants reported that family support and good parent-child relationships, routines, monitoring and reminding and organisational tools such as pill boxes facilitated treatment adherence. Other issues that emerged included immediacy of treatment effects and parent-adolescent responsibility for treatment. Patients and parents experience a number of challenges related to adherence within behavioural, educational, organisational and health belief domains. Behavioural interventions should focus on these issues, reduction of perceived barriers, and effective transition of responsibility for treatment adherence. Future research considerations are discussed.
本研究旨在通过定性描述性个体访谈方法，探讨影响炎症性肠病治疗依从性的患者和家长感知因素。2007 年 5 月至 8 月，招募了 16 名青少年及其家长，并采用开放式半结构式访谈形式，就药物依从性进行访谈。访谈进行了录音、转录和编码，以确定主题。亲子二人组确定了遗忘、干扰活动、亲子冲突和对立行为以及治疗计划不足是依从性的挑战。参与者报告称，家庭支持和良好的亲子关系、常规、监测和提醒以及药丸盒等组织工具有助于治疗依从性。还出现了其他一些问题，包括治疗效果的即时性和家长对治疗的责任。患者和家长在行为、教育、组织和健康信念领域都面临着许多与依从性相关的挑战。行为干预应该针对这些问题，减少感知障碍，并有效地过渡治疗依从的责任。讨论了未来的研究考虑因素。
