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加沙地带的创伤性脑损伤:成人、儿童及其照顾者的残疾负担。

Traumatic brain injury in the Gaza Strip: adults and children and their caregiver disability burden.

机构信息

Department of Physical Therapy, Faculty of Rehabilitation Sciences, University of Jordan, Amman, Jordan.

出版信息

Eur J Phys Rehabil Med. 2011 Jun;47(2):193-201. Epub 2010 Dec 9.

PMID:21150858
Abstract

BACKGROUND

Traumatic brain injury (TBI) may lead to long term behavioral, cognitive, physical, mental, social deficits which might influence daily activities of patient and caregiver.

AIM

To determine the disability aspects and its levels among patients with TBI and their caregivers in Gaza Strip.

DESIGN

Cross section study with analytic descriptive structure.

SETTING

El-Wafa Medical Rehabilitation and Specialized Surgery Hospital in Gaza Strip in the period between 2000 to 2007.

POPULATION

A convenience sampling strategy was used to obtain one hundred patients with TBI and their caregivers.

METHODS

On-site visits were arranged with all participants to collect data about their functional outcome measures. These measures included: 1) Functional Independence Measurement (FIM); and 2) Disability Rating Scale (DRS) to evaluate the functional independence level and the degree of disability of patients with TBI respectively; 3) Community Integration Questionnaire (CIQ) to evaluate the degree of community integration of caregivers.

RESULTS

The worst performance of patients with TBI according to FIM was recorded in bowel and bladder control (40.1% and 35.8% respectively) while the DRS questionnaire revealed that employability established the area of greatest disability for patients with TBI (69.33%). In CIQ the greatest burden on caregivers was noted in productivity, social integration, and home integration with weight means equal 50.00%, 51.67% and 56.00% respectively.

CONCLUSION

Both patients with TBI and their caregivers reported high level of disability burden. Caregivers showed low level of community integration in the society due to caring patients with TBI. Clinical Rehabilitation Impact. This study enhances the responsible rehabilitation organizations (governmental, non-governmental and international) to improve the provided health services to patients with TBI and their caregivers and advocates these individuals' rights.

摘要

背景

创伤性脑损伤(TBI)可能导致长期的行为、认知、身体、精神和社会缺陷,这可能会影响患者和照顾者的日常活动。

目的

确定加沙地带 TBI 患者及其照顾者的残疾方面及其程度。

设计

具有分析描述结构的横断面研究。

地点

加沙地带的 El-Wafa 医疗康复和专科医院,时间在 2000 年至 2007 年之间。

人群

采用便利抽样策略,获得 100 名 TBI 患者及其照顾者。

方法

对所有参与者进行现场访问,以收集有关其功能结果测量的信息。这些措施包括:1)功能独立性测量(FIM);2)残疾评定量表(DRS),分别评估 TBI 患者的功能独立性水平和残疾程度;3)社区融入问卷(CIQ),评估照顾者的社区融入程度。

结果

根据 FIM,TBI 患者的最差表现记录在肠道和膀胱控制方面(分别为 40.1%和 35.8%),而 DRS 问卷显示,对于 TBI 患者,就业能力是最具残疾的领域(69.33%)。在 CIQ 中,照顾者在生产力、社会融合和家庭融合方面的负担最大,权重均值分别为 50.00%、51.67%和 56.00%。

结论

TBI 患者及其照顾者都报告了高度的残疾负担。由于照顾 TBI 患者,照顾者在社会中的社区融入程度较低。临床康复影响。本研究提高了负责康复组织(政府、非政府和国际),以改善向 TBI 患者及其照顾者提供的卫生服务,并主张这些个人的权利。

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