Program Development Centre, CIRO+, Centre of Expertise for Chronic Organ Failure, Hornerheide 1, 6085 NM Horn, The Netherlands.
Eur Respir J. 2011 Aug;38(2):268-76. doi: 10.1183/09031936.00157710. Epub 2011 Jan 13.
Improving patient-clinician communication about end-of-life care is important in order to enhance quality of care for patients with chronic obstructive pulmonary disease (COPD). Our objective was to compare quality of patient-clinician communication about end-of-life care, and endorsement of barriers and facilitators to this communication in the Netherlands and the USA. The present study was an analysis of survey data from 122 Dutch and 391 US outpatients with COPD. We compared quality of patient-clinician communication about end-of-life care (Quality of Communication questionnaire) and barriers and facilitators to communication about end-of-life care (Barriers and Facilitators Questionnaire) between the Netherlands and the USA, controlling for patients' demographic and illness characteristics. Although Dutch patients in this study had worse lung function and disease-specific health status than US patients, Dutch patients reported lower quality of communication about end-of-life care (median score 0.0 (interquartile range 0.0-2.0) versus 1.4 (0.0-3.6); adjusted p<0.005). Clinicians in both countries rarely discussed life-sustaining treatment preferences, prognoses, dying processes or spiritual issues. Quality of communication about end-of-life care needs to improve in the Netherlands and the USA. Future studies to improve this communication should be designed to take into account international differences and patient-specific barriers and facilitators to communication about end-of-life care.
改善医患之间关于临终关怀的沟通对于提高慢性阻塞性肺疾病(COPD)患者的护理质量非常重要。我们的目的是比较荷兰和美国在临终关怀方面医患沟通的质量,以及对这种沟通的障碍和促进因素的认可。本研究对来自荷兰的 122 名门诊 COPD 患者和美国的 391 名门诊 COPD 患者的调查数据进行了分析。我们比较了荷兰和美国在临终关怀方面医患沟通的质量(沟通质量问卷)和沟通的障碍和促进因素(障碍和促进因素问卷),并控制了患者的人口统计学和疾病特征。尽管荷兰患者在本研究中的肺功能和疾病特异性健康状况比美国患者差,但荷兰患者报告的临终关怀沟通质量较低(中位数评分为 0.0(四分位距 0.0-2.0)与 1.4(0.0-3.6);调整后 p<0.005)。两国的医生很少讨论维持生命的治疗偏好、预后、死亡过程或精神问题。荷兰和美国都需要提高临终关怀的沟通质量。未来旨在改善这种沟通的研究应考虑到国际差异以及患者对临终关怀沟通的具体障碍和促进因素。