Department of Communication Sciences and Disorders, University of Cincinnati, Cincinnati, OH, USA.
Top Stroke Rehabil. 2010 Nov-Dec;17(6):432-50. doi: 10.1310/tsr1706-432.
This study sought to obtain authentic information about life participation after stroke and aphasia. An interview was conducted with 40 individuals from diverse backgrounds and living in 2 geographic locations who had aphasia of at least 9 months. Participants were interviewed using the Profile of Functional Activities and Life Participation (PFALP), a semistructured, conversational approach to obtain self-reported information about a person's life participation profile. Life participation profiles were unique for each participant. Overall, participants reported having difficulty with many activities for which they judged themselves to be moderately impaired and for which they reported low performance satisfaction. Interview data provided information about participation restrictions related to communication and other areas. Results highlight the need for personally relevant follow-up assessment of life participation among people with chronic aphasia to identify and guide viable interventions that extend beyond the traditional scope of care.
本研究旨在获取有关中风和失语症后生活参与的真实信息。对来自两个地理区域的 40 名背景各异、失语症至少 9 个月的个体进行了访谈。采用功能活动和生活参与概况（PFALP）对参与者进行访谈，这是一种半结构化的、对话式的方法，用于获取有关个人生活参与概况的自我报告信息。生活参与概况因每位参与者而异。总体而言，参与者报告在许多他们认为自己中度受损且报告绩效满意度低的活动中存在困难。访谈数据提供了与沟通和其他领域的参与限制相关的信息。结果强调需要对慢性失语症患者的生活参与进行个性化的后续评估，以确定并指导可行的干预措施，这些干预措施超出了传统护理范围。
