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1
Quality of life in multiple sclerosis.多发性硬化症患者的生活质量。
J Med Life. 2010 Oct-Dec;3(4):352-8.
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[Current possibilities of assessment of quality of life in multiple sclerosis].[多发性硬化症患者生活质量评估的当前可能性]
Neurol Neurochir Pol. 2006 Jul-Aug;40(4):336-41.
3
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Is there a differential impact of fatigue and physical disability on quality of life in multiple sclerosis?疲劳和身体残疾对多发性硬化症患者的生活质量是否有不同影响?
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Discriminative ability of quality of life measures in multiple sclerosis.多发性硬化症生活质量评估工具的鉴别能力。
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Self-assessed health status changes in a community cohort of people with multiple sclerosis: 11 years of follow-up.社区多发性硬化患者队列的自我评估健康状况变化:11 年随访。
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Benefits of Equine-Assisted Therapies in People with Multiple Sclerosis: A Systematic Review.马辅助疗法对多发性硬化症患者的益处:一项系统综述。
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本文引用的文献

1
Quality of life of post-stroke patients and their caregivers.中风患者及其照顾者的生活质量。
J Med Life. 2010 Jul-Sep;3(3):216-20.
2
Validation of a self-report comorbidity questionnaire for multiple sclerosis.多发性硬化症自报共病问卷的验证。
Neuroepidemiology. 2010 Aug;35(2):83-90. doi: 10.1159/000311013. Epub 2010 Jun 15.
3
Development of a patient reported outcome scale for fatigue in multiple sclerosis: The Neurological Fatigue Index (NFI-MS).多发性硬化症疲劳患者报告结局量表的研制:神经疲劳指数(NFI-MS)。
Health Qual Life Outcomes. 2010 Feb 12;8:22. doi: 10.1186/1477-7525-8-22.
4
The impact of pain and other symptoms on quality of life in women with relapsing-remitting multiple sclerosis.缓解-复发型多发性硬化症女性患者的疼痛及其他症状对生活质量的影响。
J Neurosci Nurs. 2009 Dec;41(6):322-8. doi: 10.1097/jnn.0b013e3181b6be96.
5
The impact of disability, fatigue and sleep quality on the quality of life in multiple sclerosis.残疾、疲劳和睡眠质量对多发性硬化症患者生活质量的影响。
Ann Indian Acad Neurol. 2008 Oct;11(4):236-41. doi: 10.4103/0972-2327.44559.
6
Fatigue characteristics in multiple sclerosis: the North American Research Committee on Multiple Sclerosis (NARCOMS) survey.多发性硬化症的疲劳特征:北美多发性硬化症研究委员会(NARCOMS)调查
Health Qual Life Outcomes. 2008 Nov 14;6:100. doi: 10.1186/1477-7525-6-100.
7
[The social and familial dimension: experiences of caregivers and people with multiple sclerosis. The GEDMA study].[社会和家庭层面:多发性硬化症患者照料者及患者的经历。GEDMA研究]
Rev Neurol. 2008;47(6):281-5.
8
Responsiveness and predictive value of EDSS and MSFC in primary progressive MS.扩展残疾状态量表(EDSS)和多发性硬化功能综合评分(MSFC)在原发性进行性多发性硬化中的反应性和预测价值。
Neurology. 2008 Mar 25;70(13 Pt 2):1084-91. doi: 10.1212/01.wnl.0000288179.86056.e1. Epub 2008 Jan 9.
9
[Validation of selected aspects of psychometry of the Polish version of the Multiple Sclerosis Impact Scale 29 (MSIS-29)].[波兰版多发性硬化症影响量表29(MSIS - 29)心理测量学特定方面的验证]
Neurol Neurochir Pol. 2007 May-Jun;41(3):215-22.
10
[Current possibilities of assessment of quality of life in multiple sclerosis].[多发性硬化症患者生活质量评估的当前可能性]
Neurol Neurochir Pol. 2006 Jul-Aug;40(4):336-41.

多发性硬化症患者的生活质量。

Quality of life in multiple sclerosis.

作者信息

Opara Józef A, Jaracz Krystyna, Brola Waldemar

机构信息

Academy of Physical Education, Katowice, Poland.

出版信息

J Med Life. 2010 Oct-Dec;3(4):352-8.

PMID:21254730
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3019078/
Abstract

An overall aim of treatment in multiple sclerosis is to lower the negative impact of the disease on functioning and quality of life of patients. Therefore, a measurement of functioning and quality of life should be included in the evaluation of the effectiveness of treatment. The most commonly used quality of life questionnaires, either generic or specific, were presented in this paper,. Information about clinical and functional status is useful in the interpretation of the quality of life assessment results. Because of that, instruments for the assessment of depression, cognitive functions, functional ability and fatigue in multiple sclerosis were also described.

摘要

多发性硬化症治疗的总体目标是降低该疾病对患者功能和生活质量的负面影响。因此,在评估治疗效果时应纳入对功能和生活质量的测量。本文介绍了最常用的生活质量问卷,包括通用问卷和特定问卷。有关临床和功能状态的信息有助于解释生活质量评估结果。因此,还描述了用于评估多发性硬化症患者抑郁、认知功能、功能能力和疲劳的工具。