Jamroz-Wiśniewska Anna, Papuć Ewa, Bartosik-Psujek Halina, Belniak Ewa, Mitosek-Szewczyk Krystyna, Stelmasiak Zbigniew
Katedra i Klinika Neurologii Akademii Medycznej im. prof. Feliksa Skubiszewskiego w Lublinie, Lublin.
Neurol Neurochir Pol. 2007 May-Jun;41(3):215-22.
Because of the small number of self-reported measures of disease impact on the quality of patients' life used in Poland and specific for multiple sclerosis (MS), the aim of the study was to validate selected aspects of psychometry of the Polish adaptation of the Multiple Sclerosis Impact Scale 29, MSIS-29.
MSIS-29 was first published by Hobart and Thompson in 2001, and consists of 29 questions, the first 20 of which address the physical impact component and 9 assess the psychological impact. The higher the score, the worse is the impact of the disease on quality of patient's life. Validation analysis consisted of translation of the original English version into Polish according to all necessary translation principles and of assessment of convergent validity and internal reliability of the Polish version of MSIS-29. 104 randomly selected patients with definite MS (according to McDonald criteria) were examined: 77 women and 27 men; mean age was 36.9+/-9.4 years, and the mean disease duration was 9.05+/-6.68 years. The disability of the patients was assessed according to the Expanded Disability Status Scale (EDSS). Apart from the examined measure (MSIS-29) subjects were also asked to complete the Functional Assessment of Multiple Sclerosis (FAMS), Beck's Depression Inventory (BDI-II) and the Fatigue Severity Scale (FSS).
MSIS-29 correlated with EDSS, FAMS, BDI-II and FSS. Internal consistency of MSIS-29 was satisfactory.
Psychometric-statistical analysis showed that the Polish version of MSIS-29 is a valuable measure to examine the impact of disease on patients' life. The studies should be continued taking into account other aspects of psychometry.
由于波兰使用的针对多发性硬化症(MS)且能自我报告疾病对患者生活质量影响的测量方法数量较少,本研究旨在验证多发性硬化症影响量表29(MSIS - 29)波兰语版心理测量学的选定方面。
MSIS - 29由霍巴特和汤普森于2001年首次发表,包含29个问题,前20个涉及身体影响部分,9个评估心理影响。分数越高,疾病对患者生活质量的影响越差。验证分析包括根据所有必要的翻译原则将原始英文版本翻译成波兰语,以及评估MSIS - 29波兰语版的收敛效度和内部信度。随机选取104例确诊为MS(根据麦克唐纳标准)的患者进行检查:77名女性和27名男性;平均年龄为36.9±9.4岁,平均病程为9.05±6.68年。根据扩展残疾状态量表(EDSS)评估患者的残疾情况。除了所检查的测量方法(MSIS - 29)外,还要求受试者完成多发性硬化症功能评估(FAMS)、贝克抑郁量表(BDI - II)和疲劳严重程度量表(FSS)。
MSIS - 29与EDSS、FAMS、BDI - II和FSS相关。MSIS - 29的内部一致性令人满意。
心理测量学统计分析表明,MSIS - 29波兰语版是检测疾病对患者生活影响的一项有价值的测量方法。应继续开展研究,同时考虑心理测量学的其他方面。