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心脏病患者及其配偶感知疾病侵扰程度和疾病严重程度的差异。

Disparity in perceived illness intrusiveness and illness severity between cardiac patients and their spouses.

机构信息

Department of Community Health Sciences, University of Calgary, Canada.

出版信息

J Cardiovasc Nurs. 2011 Nov-Dec;26(6):481-6. doi: 10.1097/JCN.0b013e3182092c11.

DOI:10.1097/JCN.0b013e3182092c11
PMID:21263335
Abstract

BACKGROUND

Recovery following a cardiac event is a complex physiological and psychological process that seldom occurs in isolation. The interdependence of a marital relationship may result in the spouse influencing the patient's overall recovery and the psychological well-being of both. The aim of the study was to assess whether perceived illness intrusiveness and illness severity differed between cardiac patients and their spouses and whether their perceptions were modified by treatment received. A thematic analysis of written feedback from patients and spouses informed the interpretation of the quantitative results.

METHODS

Sixty-two male cardiac patients and their female spouses completed the Illness Intrusiveness Rating Scale and Perceived Severity of Illness Scale. Participants also provided written comments about anticipated life changes. A 2-way mixed-model analysis of variance was used to compare patient and spouse scores.

RESULTS

There were no differences in terms of perceived illness intrusiveness. A statistically significant higher level of perceived illness severity was reported by spouses whose husbands had cardiac surgery (difference = 48.8 points, F1,59 = 23.2, P = .001). Five themes emerged from the written responses of the patients: anticipated lifestyle change, change in self-perception, reprioritization, enhanced quality of life, and uncertainty. Four themes emerged from the spouses: taking on responsibility, uncertainty, enhanced quality of life, and getting back to normal.

CONCLUSIONS

Spouses of cardiac surgery patients had different perceptions about illness than their patient-partner. Future research should be directed toward a better understanding of how divergent illness beliefs develop during the recovery period, and how they impact physical and psychological well-being.

摘要

背景

心脏事件后的恢复是一个复杂的生理和心理过程,很少孤立发生。婚姻关系的相互依存可能导致配偶影响患者的整体恢复和双方的心理幸福感。本研究的目的是评估心脏患者及其配偶之间是否存在感知疾病侵入性和疾病严重程度的差异,以及他们的感知是否因所接受的治疗而改变。对患者和配偶书面反馈的主题分析为定量结果的解释提供了信息。

方法

62 名男性心脏患者及其女性配偶完成了疾病侵入性评分量表和疾病严重程度感知量表。参与者还对预期的生活变化提供了书面意见。采用 2 因素混合模型方差分析比较患者和配偶的评分。

结果

在感知疾病侵入性方面没有差异。接受心脏手术的丈夫的配偶报告了更高水平的感知疾病严重程度(差异=48.8 分,F1,59=23.2,P=0.001)。患者书面回复中出现了五个主题:预期生活方式的改变、自我认知的改变、重新排序、生活质量的提高和不确定性。配偶的书面回复中出现了四个主题:承担责任、不确定性、生活质量的提高和恢复正常。

结论

心脏手术患者的配偶对疾病的看法与他们的患者伴侣不同。未来的研究应该致力于更好地理解在恢复期间如何形成不同的疾病信念,以及它们如何影响身体和心理健康。

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