Faculty of Health and Life Sciences, University of the West of England, Glenside Campus, Blackberry Hill, Stapleton, Bristol.
Sociol Health Illn. 2011 May;33(4):618-33. doi: 10.1111/j.1467-9566.2010.01305.x. Epub 2011 Feb 1.
Biographical disruption and related concepts have been widely applied in chronic illness. Different conceptualisations of normalisation have also been proposed in order to explain individuals' diverse responses to illness on their biography, but as yet, not clearly related to changing bodily experience or normalisation of symptoms. This article aims to examine the relevance of these concepts in rheumatoid arthritis (RA), an unpredictable autoinflammatory disease characterised by painful and swollen joints, disability, fatigue and joint damage. Interviews were conducted with 23 people living with RA, and analysed using Framework, to enable people's whole narratives and context to be considered. Six typologies of normality emerged from the data: disrupted; struggling to maintain; fluctuating; resetting; returning; and continuing normality. Multiple normalities were often present in individuals' narratives, with one normality typology usually dominating at the time of the interview. The typologies connect to several biographical concepts, and instances of 'biographical reinstatement' were also found, where participants described returning to normal life, through perceived effective medication rather than reconceptualisation of health. The concept of 'shifting normalities' is proposed, providing a dynamic explanatory model of chronic illness that captures the interaction of changing conceptions of a normal life and the normalisation of symptoms.
传记性中断及相关概念已被广泛应用于慢性疾病领域。为了解释个体在传记背景下对疾病的不同反应,人们还提出了不同的正常化概念,但这些概念与身体体验的变化或症状的正常化尚未明确相关。本文旨在探讨这些概念在类风湿关节炎(RA)中的相关性。RA 是一种不可预测的自身炎症性疾病,其特征为关节疼痛和肿胀、残疾、疲劳和关节损伤。我们对 23 名 RA 患者进行了访谈,并使用框架分析法进行了分析,以便能够全面考虑人们的叙述和背景。研究结果显示,数据中出现了六种正常性类型:中断型;努力维持型;波动型;重置型;恢复型;持续正常型。在个体的叙述中,通常存在多种正常性类型,其中一种正常性类型在访谈时通常占主导地位。这些类型与几个传记概念相关联,同时也发现了“传记恢复”的情况,即参与者通过感知到有效的药物治疗而不是对健康的重新概念化,从而描述了回归正常生活的情况。本文提出了“变化的正常性”这一概念,为慢性疾病提供了一个动态的解释模型,该模型捕捉到了正常生活观念变化和症状正常化之间的相互作用。