Kristiansen T M, Primdahl J, Antoft R, Hørslev-Petersen K
King Christian X' Hospital for Rheumatic Diseases, Graasten, Denmark.
Musculoskeletal Care. 2012 Sep;10(3):162-70. doi: 10.1002/msc.1013. Epub 2012 May 24.
The aim of this follow-up study was twofold: firstly, to explore how people who were clinically regarded to be in a state of remission experienced their everyday lives with rheumatoid arthritis (RA); secondly, to explore the experiences of people in early remission with healthcare provision and their perceived support needs.
Two focus group interviews were conducted with 11 participants in total. Interview data were analysed using content analysis methods.
All participants felt that they were able to continue their normal everyday activities at home, at leisure and at work. They were also able to maintain their normal roles. Continuing the normality of everyday life seemed to be the most important defining variable for experiencing being in remission. Support needs were directly related to the participants' positive experiences of actual support from the healthcare providers and were related to the continuity of the care provider, coherence, being taken care of, having a personal and trusting relationship with the health professionals and being properly informed about RA and how to manage it.
The participants wanted to concentrate on wellness and tended to avoid thinking of possible side effects, being chronic ill and the development of RA in the future.
这项随访研究的目的有两个：第一，探讨临床上被认为处于缓解状态的类风湿关节炎（RA）患者如何体验他们的日常生活；第二，探讨处于早期缓解期的患者在医疗保健服务方面的经历以及他们所感知到的支持需求。
总共对11名参与者进行了两次焦点小组访谈。访谈数据采用内容分析法进行分析。
所有参与者都觉得他们能够在家中、休闲时和工作中继续正常的日常活动。他们也能够维持正常的角色。对于体验缓解状态而言，延续日常生活的正常状态似乎是最重要的决定性变量。支持需求与参与者从医疗服务提供者那里获得实际支持的积极体验直接相关，并且与护理提供者的连续性、连贯性、得到照顾、与健康专业人员建立个人信任关系以及获得关于RA及其管理的适当信息有关。
参与者希望专注于健康，倾向于避免思考可能的副作用、慢性病以及RA未来的发展。
